Addiction/Substance Abuse/Dependence
http://www.nmha.org/substance/factsheet.cfm
National Council
on Alcoholism and Drug Dependence
22 Cortlandt Street, Suite 801
New York, NY 10007-3128
Phone: (212) 269-7797
Fax: (212) 269-7510
Help Line: (800) NCA-CALL (24-hour Affiliate referral)
http://www.ncadd.org/index.html
NARSAD: The Mental
Health Research Organization
60 Cutter Mill Road, Suite 404
Great
Neck,
NY
11021
Phone: (516)
829-0091
or
(800)
829-8289
Fax: (516)487-6930
http://www.narsad.org/
NARSAD
Artworks
P.O. Box 941
La
Habra,
CA
90633-0941
Phone: (714)
529-5571
or
(800)
607-2599
Fax: (714)
990-0791
https://narsadartworks.org/Default.aspx
National
Alliance on Mental Illness
Colonial Place Three
2107 Wilson Blvd., Suite 300
Arlington, VA 22201-3042
Phone: (703)
524-7600
Fax: (703)
524-9094
TDD: (703)
516-7227
http://www.nami.org/
National Council on Alcoholism and Drug Dependence
22 Cortlandt Street, Suite 801
New York, NY 10007-3128
Phone: (212) 269-7797
Fax: (212) 269-7510
Help Line: (800) NCA-CALL (24-hour Affiliate referral)
http://www.ncadd.org/index.html
National
Organization on Fetal Alcohol Syndrome
900 17th Street, NW, Suite 910
Washington, DC 20006
Phone: (202)
785-4585,
+1 (800) 66NOFAS
Fax: (202)
466-6456
http://www.nofas.org/about/
Racing
for Recovery
6936 Clare Ct.
Sylvania, OH 43560
Phone: (419)
824-8462
http://www.racingforrecovery.com/
Substance Abuse and Mental Health Services Administration
1 Choke Cherry Road
Rockville, MD 20857
Phone: (240)
276-2000
Fax: (240)
276-2010
http://www.samhsa.gov/
Adrenoleukodystrophy (see Leukodystrophy)
http://www.ninds.nih.gov/disorders/adrenoleukodystrophy/adrenoleukodystrophy.htm
Agenesis of the Corpus Callosum/Corpus Callosum Disorders
http://www.ninds.nih.gov/disorders/agenesis/agenesis.htm
ACC (Agenesis of
the Corpus Callosum) Network
5749 Merrill
Hall, Room 118
College of Education and Human Development
University of Maine
Orono, ME 04469-5749
Phone: (207) 581-3119
Fax: (207) 581-3120
http://www.umaine.edu/edhd/research/accnetwork.htm
Angels
Around the World (Agenesis of the Corpus Callosum online support and
advocacy)
http://members.tripod.com/~scenicbeauty/AngelsAroundTheWorld.html
The March of Dimes
1275 Mamaroneck Avenue
White Plains, NY 10605
Phone: 914-428-7100 888-MODIMES (663-4637)
Fax: 914-428-8203
http://www.marchofdimes.com
National
Organization of Disorders of the Corpus Callosum
PMB 363
18032-C Lemon Drive
Yorba Linda, CA 92886
Phone:
(714)
747-0063
Fax: (714)
693-0808
http://www.nodcc.org/
National
Organization for Rare Disorders
55 Kenosia Avenue
PO Box 1968
Danbury, CT 06813-1968
Phone: (203)
744-0100
or
(800)
999-6673
(voicemail only)
TDD Number: (203)
797-9590
Fax: (203)
798-2291
http://www.rarediseases.org/
Alzheimer’s Disease
http://www.nmha.org/infoctr/factsheets/101.cfm
Alzheimer’s Association
National Office
225 N. Michigan Ave.,
Fl. 17
Chicago, IL 60601-7633
Phone: (800)
272-3900
http://www.alz.org/
Amyotrophic Lateral Sclerosis (ALS/Lou
Gehrig's Disease)
http://www.alsa.org/als/facts.cfm
ALS Association
27001 Agoura Road, Suite 150
Calabasas Hills,
CA
91301-5104
Phone: (818)
880-9007
Fax: (818)
880-9006
http://www.alsa.org/
Anxiety Disorders
http://www.nmha.org/camh/anxiety/anxdis.cfm
Anxiety Disorders Association of America
8730 Georgia Ave., Suite 600
Silver Spring,
MD
20910
Phone: (240)
485-1001
Fax: (240)
485-1035
http://www.adaa.org/
NARSAD:
The Mental Health Research Association
60 Cutter Mill Road, Suite 404
Great
Neck,
NY
11021
Phone: (516)
829-0091
or
(800)
829-8289
Fax: (516)487-6930
http://www.narsad.org/
NARSAD
Artworks
P.O. Box 941
La
Habra,
CA
90633-0941
Phone: (714)
529-5571
or
(800)
607-2599
Fax: (714)
990-0791
https://narsadartworks.org/Default.aspx
National
Alliance on Mental Illness
Colonial Place Three
2107 Wilson Blvd., Suite 300
Arlington, VA 22201-3042
Phone: (703)
524-7600
Fax: (703)
524-9094
TDD: (703)
516-7227
http://www.nami.org/
National
Association of Anorexia Nervosa and Associated Disorders
P.O. Box 7
Highland Park,
IL
60035
Phone: (847)
831-3438
Fax: (847)
433-4632
http://www.anad.org/site/anadweb/
National
Eating Disorders Association
603 Stewart St., Suite 803
Seattle, WA 98101
Phone: (206)
382-3587
Help Line: (800)
931-2237
http://www.nationaleatingdisorders.org/p.asp?WebPage_ID=331
Obsessive Compulsive Foundation
676 State Street
New Haven,
CT
06511
Phone: (203)
401-2070
Fax: (203)
401-2076
http://www.ocfoundation.org/
PTSD
(Post Traumatic Stress Disorder)
Alliance
http://www.ptsdalliance.org/home2.html
Arachnoid Cyst
http://www.ninds.nih.gov/disorders/arachnoid_cysts/arachnoid_cysts.htm
National Organization for Rare Disorders
55 Kenosia Avenue
PO Box 1968
Danbury, CT 06813-1968
Phone:
(203)
744-0100
or
(800)
999-6673
(voicemail only)
TDD Number: (203)
797-9590
Fax: (203)
798-2291
http://www.rarediseases.org/
Arnold-Chiari Malformation
http://www.ninds.nih.gov/disorders/chiari/chiari.htm
National Organization for Rare Disorders
55 Kenosia Avenue
PO Box 1968
Danbury, CT 06813-1968
Phone:
(203)
744-0100
or
(800)
999-6673
(voicemail only)
TDD Number: (203)
797-9590
Fax: (203)
798-2291
http://www.rarediseases.org/
Ataxia Telangiectasia
http://www.nlm.nih.gov/medlineplus/ency/article/001394.htm
Ataxia Telangiectasia Children's Project (A-T Children's Project)
668 South Military Trail
Deerfield Beach Florida 33442-3023
Phone: (954) 481-6611 or (800) 543-5728
Fax: (954) 725-1153
http://www.communityatcp.org/NETCOMMUNITY/Page.aspx?pid=567&srcid=-2
National Ataxia Foundation
2600 Fernbrook Lane Suite 119
Minneapolis, MN 55447-4752
Phone: (763)553-0020
Fax: (763) 553-0167
http://www.ataxia.org/about/national-ataxia-foundation.aspx
Attention Deficit Disorder
http://www.nmha.org/infoctr/factsheets/71.cfm
Children and Adults with Attention Deficit Hyperactivity Disorder
8181 Professional Place, Suite 150
Landover, MD 20785
Phone: (301)
306-7070
Fax: (301)
306-7090
http://www.chadd.org/AM/Template.cfm?Section=Home
Autism/Asperger Syndrome/Pervasive Developmental Disorders
http://www.nmha.org/infoctr/factsheets/73.cfm
Autism Society of
America
7910 Woodmont Avenue, Suite 300
Bethesda, MD 20814-3067
Phone:
(301)
657-0881
or (800) 3AUTISM
Fax: (301)
657-0869
http://www.autism-society.org
Autism Speaks (previously Cure Autism Now Fdn)
2 Park Avenue 11th Floor
New York, NY
Phone: (212) 252-8584 or (888) 288-4462
Fax: (212) 252-8676
http://www.autismspeaks.org/
International Rett Syndrome Association
9121 Piscataway Road, #2B
Clinton, MD 20735
Phone: (800) 818-RETT
Fax:
(301)
856-3336
http://www.rettsyndrome.org/
Bipolar Disorder
http://www.nmha.org/infoctr/factsheets/25.cfm
Bipolar Focus (Bipolar disorder online support and advocacy)
http://www.pendulum.org/index.html
Child
and Adolescent Bipolar Foundation
820 Davis St., Ste. 520
Evanston, IL 60201
Phone: (847) 492-8519
Fax: (847) 492-8520
www.bpkids.org
Depression and Bipolar Support
Alliance
730 N. Franklin Street, Suite 501
Chicago, IL 60610-7224 USA
Phone: (800)
826-3632
Fax: (312)
642-7243
http://www.dbsalliance.org/advocacy/advocate.html
NARSAD:
The Mental Health Research Association
60 Cutter Mill Road, Suite 404
Great
Neck,
NY
11021
Phone: (516)
829-0091
or
(800)
829-8289
Fax: (516)487-6930
http://www.narsad.org/
NARSAD
Artworks
P.O. Box 941
La
Habra,
CA
90633-0941
Phone: (714)
529-5571
or
(800)
607-2599
Fax: (714)
990-0791
https://narsadartworks.org/Default.aspx
National
Alliance on Mental Illness
Colonial Place Three
2107 Wilson Blvd., Suite 300
Arlington, VA 22201-3042
Phone: (703)
524-7600
Fax: (703)
524-9094
TDD: (703)
516-7227
http://www.nami.org/
Borderline Personality Disorder
http://www.nimh.nih.gov/publicat/bpd.cfm?textSize=L
Borderline Personality Disorder Research Foundation
340 W. 12th Street
New York,
NY
10014
Phone: (212)
421-5244
Fax: (212)
421-5243
http://www.borderlineresearch.org/index.html
BPDCentral.com (Borderline personality disorder online support and
advocacy)
http://www.bpdcentral.com/index.shtml
NARSAD:
The Mental Health Research Association
60 Cutter Mill Road, Suite 404
Great
Neck,
NY
11021
Phone: (516)
829-0091
or
(800)
829-8289
Fax: (516)487-6930
http://www.narsad.org/
NARSAD
Artworks
P.O. Box 941
La
Habra,
CA
90633-0941
Phone: (714)
529-5571
or
(800)
607-2599
Fax: (714)
990-0791
https://narsadartworks.org/Default.aspx
National
Alliance on Mental Illness
Colonial Place Three
2107 Wilson Blvd., Suite 300
Arlington, VA 22201-3042
Phone: (703)
524-7600
Fax: (703)
524-9094
TDD: (703)
516-7227
http://www.nami.org/
Brain Injury
http://www.cdc.gov/ncipc/tbi/TBI.htm
Brain Injury Association of America
8201 Greensboro Drive, Suite 611
McLean, VA 22102
Phone: (703)
761-0750
or
(800)
444-6443
http://www.biausa.org/index.html
Brain
Injury Resource Foundation
1841 Montreal Road, Suite 220
Tucker, GA 30084
Phone: (678)
937-1555
or
(888)
334-2424
Fax: (678)937-1557
http://www.birf.info/index.shtml
Brain Tumor
http://www.tbts.org/itemDetail.asp?categoryID=383&itemID=16635
American
Cancer Society (National Headquarters)
1599 Clifton Road, NE
Atlanta, GA 30329
Phone: (800)
ACS-2345
http://www.cancer.org
The
Brain Tumor Awareness Organization
987 Dacusville Road
Marietta, SC 29661
Phone:
(864)
836-4609
http://www.braintumorawareness.org
Children’s Brain Tumor Foundation
274 Madison Avenue, Suite 1004
New York,
NY
10016
http://www.cbtf.org/about.html
National Brain
Tumor Society
124 Watertown Street, Suite 2D
Watertown,
MA
02472
Phone: (800)
770-8287, (617) 924-9997 (East Coast), (415)
834-9970 (West Coast)
Fax: (617)
924-9998
http://www.braintumor.org/
North
American Brain Tumor Coalition
Elizabeth Goss, Esq., NABTC Counsel, Ropes & Gray, LLP
One Metro Center
700 12th Street, NW, Suite 900
Washington, DC 20005
Phone:
(202)
508-4670
Fax: (202)
508-4650
http://www.nabraintumor.org/about.html
Central Pain Syndrome
http://www.ninds.nih.gov/disorders/central_pain/central_pain.htm
American Chronic Pain Association
P.O. Box 850
Rocklin, CA 95677-0850
Phone: (800) 533-3231 (916) 632-0922
Fax: (916) 652-8190
http://www.theacpa.org
American Pain Foundation
201 North Charles Street Suite 701
Baltimore, MD 21201
Phone: (888) 615-PAIN (7246)
Fax: (410) 385-1832
http://www.painfoundation.org
Central Pain Syndrome Alliance
http://www.centralpain.org/index.html
National Foundation for the Treatment of Pain
P.O. Box 70045
Houston, TX 77270
Phone: (713) 862-9332
Fax: (713) 862-9346
http://www.paincare.org
Cerebral Palsy
http://www.marchofdimes.com/professionals/681_1208.asp
United Cerebral Palsy
1660 L Street NW, Suite 700
Washington, DC 20036
Phone:
(800)
872-5827
or
(202)
776-0406
Fax: (202)
776-0414
http://www.ucp.org/
The March of Dimes
1275 Mamaroneck Avenue
White Plains, NY 10605
Phone: 914-428-7100 888-MODIMES (663-4637)
Fax: 914-428-8203
http://www.marchofdimes.com
Cephalic Disorders
http://www.ninds.nih.gov/disorders/cephalic_disorders/cephalic_disorders.htm#What_is
Hydranencephaly.com (Hydranencephaly online support and advocacy)
http://www.hydranencephaly.com/index.html
The
Lissencephaly Network Inc.
10408 Bitterroot Court
Fort Wayne,
IN
46804
Phone: (260)
432-4310
Fax: (260)
432-4310
http://www.lissencephaly.org/
The March of Dimes
1275 Mamaroneck Avenue
White Plains, NY 10605
Phone: 914-428-7100 888-MODIMES (663-4637)
Fax: 914-428-8203
http://www.marchofdimes.com
National
Organization for Rare Disorders
55 Kenosia Avenue
PO Box 1968
Danbury, CT 06813-1968
Phone: (203)
744-0100
or
(800)
999-6673
(voicemail only)
TDD Number: (203)
797-9590
Fax: (203)
798-2291
http://www.rarediseases.org/
Chronic Fatigue and Immune Dysfunction Syndrome
http://www.cfids.org/about-cfids/fact-sheet.asp
Chronic Fatigue and Immune Dysfunction Syndrome Association of America
P.O. Box 220398
Charlotte, NC 28222-0398
http://www.cfids.org
International Association of Chronic Fatigue Syndrome
27 N. Wacker Drive Suite 416
Chicago, IL 60606
Phone:
(847)
258-7248
Fax: (847)
579-0975
http://www.aacfs.org
National
Fibromyalgia Association
Lynne Matallana, Director
2200 Glassell Street, Suite A
Orange,
CA
92865
Phone: (714)
921-0150
Fax: (714)
921-6920
http://www.fmaware.org
National
Fibromyalgia Research Association
P.O. Box 500
Salem, OR 97308
http://www.nfra.net
Colpocephaly
http://www.ninds.nih.gov/disorders/colpocephaly/Colpocephaly.htm
National
Organization for Rare Disorders
55 Kenosia Avenue
PO Box 1968
Danbury, CT 06813-1968
Phone: (203)
744-0100
or
(800)
999-6673
(voicemail only)
TDD Number: (203)
797-9590
Fax: (203)
798-2291
http://www.rarediseases.org/
Creutzfeldt - Jakob Disease
http://www.cjdfoundation.org/fact.html
Creutzfeldt - Jakob Disease Foundation
P.O. Box 5312
Akron, OH 44334 or
286 N. Cleveland-Massillon Rd., Suite N
Akron, OH 44333
Phone:
(330)
665-5590
Help Line: (800)
659-1991
Fax: (330)
668-2474
http://www.cjdfoundation.org/
Dandy-Walker Syndrome
http://www.ninds.nih.gov/disorders/dandywalker/dandywalker.htm
Dandy-Walker Alliance
10325 Kensington Pkwy, Suite 384
Kensington, Maryland 20895
Phone: (877) Dandy-Walker
http://www.dandy-walker.org/
Guardians of Hydrocephalus Research Foundation
2618 Avenue Z
Brooklyn, NY
11235
Phone: (718) 743-4473
Fax: (718) 743-1171
http://ghrf.homestead.com/ghrf.html
Hydrocephalus Association
870 Market Street, Suite 705
San Francisco, CA 94102
Phone: (415) 732-7040 or toll-free (888) 598-3789
Fax: (415) 732-7044
http://www.hydroassoc.org/default.htm
The March of Dimes
1275 Mamaroneck Avenue
White Plains, NY 10605
Phone: 914-428-7100 888-MODIMES (663-4637)
Fax: 914-428-8203
http://www.marchofdimes.com
National Hydrocephalus Foundation
12413 Centralia Road
Lakewood, CA 90715-1623
Phone: (800) 857-3434 or (562) 402-3523
Fax: (562) 924-6666
http://www.nhonline.org
National Organization for Rare Disorders
55 Kenosia Avenue
PO Box 1968
Danbury, CT 06813-1968
Phone:
(203)
744-0100
or
(800)
999-6673
(voicemail only)
TDD Number: (203)
797-9590
Fax: (203)
798-2291
http://www.rarediseases.org/
Depression
http://www.dbsalliance.org/info/depression.html
Depression and Bipolar Support
Alliance
730 N. Franklin Street, Suite 501
Chicago, IL 60610-7224 USA
Phone: (800)
826-3632
Fax: (312)
642-7243
http://www.dbsalliance.org/advocacy/advocate.html
NARSAD:
The Mental Health Research Association
60 Cutter Mill Road, Suite 404
Great
Neck,
NY
11021
Phone: (516)
829-0091
or
(800)
829-8289
Fax: (516)487-6930
http://www.narsad.org/
NARSAD
Artworks
P.O. Box 941
La
Habra,
CA
90633-0941
Phone: (714)
529-5571
or
(800)
607-2599
Fax: (714)
990-0791
https://narsadartworks.org/Default.aspx
National
Alliance on Mental Illness
Colonial Place Three
2107 Wilson Blvd., Suite 300
Arlington, VA 22201-3042
Phone: (703)
524-7600
Fax: (703)
524-9094
TDD: (703)
516-7227
http://www.nami.org/
Dystonia
http://www.nlm.nih.gov/medlineplus/dystonia.html
Dystonia Medical Research Foundation
One East Wacker Drive, Suite 2430
Chicago, Illinois 60601-1905
Phone: (312) 755-0198 or Toll Free (800)-377-DYST (3978)
http://www.dystonia-foundation.org/
National Spasmodic Torticollis Association
9920 Talbert Avenue
Fountain Valley, CA 92708
Phone: (714) 378-9837 or Support (800) 487-8385
http://www.torticollis.org/
Eating Disorders
http://www.nimh.nih.gov/publicat/eatingdisorders.cfm
Anxiety Disorders Association of America
8730 Georgia Ave., Suite 600
Silver Spring,
MD
20910
Phone: (240)
485-1001
Fax: (240)
485-1035
http://www.adaa.org/
NARSAD:
The Mental Health Research Association
60 Cutter Mill Road, Suite 404
Great
Neck,
NY
11021
Phone: (516)
829-0091
or
(800)
829-8289
Fax: (516)487-6930
http://www.narsad.org/
NARSAD
Artworks
P.O. Box 941
La
Habra,
CA
90633-0941
Phone: (714)
529-5571
or
(800)
607-2599
Fax: (714)
990-0791
https://narsadartworks.org/Default.aspx
National
Alliance on Mental Illness
Colonial Place Three
2107 Wilson Blvd., Suite 300
Arlington, VA 22201-3042
Phone: (703)
524-7600
Fax: (703)
524-9094
TDD: (703)
516-7227
http://www.nami.org/
National
Association of Anorexia Nervosa and Associated Disorders
P.O. Box 7
Highland Park,
IL
60035
Phone: (847)
831-3438
Fax: (847)
433-4632
http://www.anad.org/site/anadweb/
National
Eating Disorders Association
603 Stewart St., Suite 803
Seattle, WA 98101
Phone: (206)
382-3587
Help Line: (800)
931-2237
http://www.nationaleatingdisorders.org/p.asp?WebPage_ID=331
Epilepsy
http://www.epilepsyfoundation.org/answerplace/
Epilepsy Foundation
8301 Professional Place
Landover, MD 20785-7223
Phone: (800)
332-1000
http://www.epilepsyfoundation.org/aboutus/
Fetal Alcohol Syndrome Spectrum Disorders
http://www.cdc.gov/ncbddd/fas/fasask.htm
National Council
on Alcoholism and Drug Dependence
22 Cortlandt Street, Suite 801
New York, NY 10007-3128
Phone: (212) 269-7797
Fax: (212) 269-7510
Help Line: (800) NCA-CALL (24-hour Affiliate referral)
http://www.ncadd.org/index.html
National
Organization on Fetal Alcohol Syndrome
900 17th Street, NW, Suite 910
Washington, DC 20006
Phone: (202)
785-4585,
+1 (800) 66NOFAS
Fax: (202)
466-6456
http://www.nofas.org/about/
Fibromyalgia
http://www.nfra.net/
National Fibromyalgia Association
Lynne Matallana, Director
2200 Glassell Street, Suite A
Orange,
CA
92865
Phone: (714)
921-0150
Fax: (714)
921-6920
http://www.fmaware.org
National
Fibromyalgia Research Association
P.O. Box 500
Salem, OR 97308
http://www.nfra.net
HIV-Induced Dementia
http://www.about-dementia.com/dementia/infectious-dementia.php
Holoprosencephaly
http://www.ninds.nih.gov/disorders/holoprosencephaly/holoprosencephaly.htm
Carter Centers for Research in Holoprosencephaly
c/o Texas Scottish Rite Hospital
P.O. Box 190567
2222 Welborn Street
Dallas, TX 75219-9982
Phone: (214) 559-8411
Fax: (214) 559-8383
http://www.stanford.edu/group/hpe
National
Organization for Rare Disorders
55 Kenosia Avenue
PO Box 1968
Danbury, CT 06813-1968
Phone: (203)
744-0100
or
(800)
999-6673
(voicemail only)
TDD Number: (203)
797-9590
Fax: (203)
798-2291
http://www.rarediseases.org/
The Arc
of the United States
1010 Wayne Avenue
Suite 650
Silver Spring, MD 20910
Phone: (301) 565-3842
Fax: (301) 565-3843 or -5342
http://www.thearc.org
Huntington's Disease
http://www.stanford.edu/group/hopes/basics/basichd/a1.html
Huntington’s Disease Advocacy Center
http://www.hdac.org/
Hydranencephaly
http://www.ninds.nih.gov/disorders/hydranencephaly/hydranencephaly.htm
Hydranencephaly.com (Hydranencephaly online support and advocacy)
http://www.hydranencephaly.com/index.html
National
Organization for Rare Disorders
55 Kenosia Avenue
PO Box 1968
Danbury, CT 06813-1968
Phone: (203)
744-0100
or
(800)
999-6673
(voicemail only)
TDD Number: (203)
797-9590
Fax: (203)
798-2291
http://www.rarediseases.org/
Hydrocephalus
http://www.ninds.nih.gov/disorders/hydrocephalus/detail_hydrocephalus.htm
Guardians of Hydrocephalus Research Foundation
2618 Avenue Z
Brooklyn, NY 11235
Phone: (718)
743-4473
Fax: (718)
743-1171
http://ghrf.homestead.com/ghrf.html.
Hydrocephalus Association
870 Market Street, Suite 705
San Francisco,
CA
94102
Phone: (415)
732-7040
or toll-free
(888)
598-3789
Fax: (415)
732-7044
http://www.hydroassoc.org/default.htm
Learning Disabilities
http://www.nifl.gov/nifl/facts/learning_disabilities.html
Children and Adults with Attention-Deficit/Hyperactivity Disorder
(CHADD)
8181 Professional Place,
Suite 150
Landover, MD 20785
Phone: (301) 306-7070
Fax: (301) 306-7090
http://www.chadd.org/AM/Template.cfm?Section=Home
International Dyslexia Association
27 8600 LaSalle Road
Chester Building, Ste. 382
Baltimore, MD 21286-2044
Phone: 410-296-0232 800-ABCD123
Fax: 410-321-5069
http://www.interdys.org
LD (learning disabilities) Online
http://www.ldonline.org
Learning Disabilities Association of America
4156 Library Road
Suite 1
Pittsburgh, PA 15234-1349
Phone: 412-341-1515
Fax: 412-344-0224
http://www.ldaamerica.org
National Center for Learning Disabilities
381 Park Avenue South
Suite 1401
New York, NY 10016
Phone: (888) 575-7373 or (212) 545-7510
Fax: (212) 545-9665
http://www.ld.org
Leukodystrophy
http://www.ninds.nih.gov/disorders/leukodystrophy/leukodystrophy.htm
Genetic Alliance, Inc.
4301 Connecticut Ave. NW Suite 404
Washington, D.C. 20008-2369
Phone: (202) 966-5557
Fax: (202) 966-8553
http://www.geneticalliance.org
National
Organization for Rare Disorders
55 Kenosia Avenue
PO Box 1968
Danbury, CT 06813-1968
Phone: (203)
744-0100
or
(800)
999-6673
(voicemail only)
TDD Number: (203)
797-9590
Fax: (203)
798-2291
http://www.rarediseases.org/
National Tay-Sachs and Allied Diseases Association
2001 Beacon Street Suite 204
Brighton, MA 02135
Phone: (800) 90-NTSAD (906-8723) or
(617) 277-4463
Fax: (617) 277-0134
http://www.ntsad.org
The Myelin Project
1400 Wallace Blvd. Suite 258
Amarillo, TX 79106
Phone:
(806)
356-4693
Toll Free: (800)
869-3546
Fax: (806)
356-4694
http://www.myelin.org/
United
Leukodystrophy Foundation
2304 Highland Drive
Sycamore, Illinois USA 60178
Phone: (800)
728-5483
FAX: (815)
895-2432
http://www.ulf.org/
Lissencephaly
http://www.ninds.nih.gov/disorders/lissencephaly/lissencephaly.htm
National
Organization for Rare Disorders
55 Kenosia Avenue
PO Box 1968
Danbury, CT 06813-1968
Phone: (203)
744-0100
or
(800)
999-6673
(voicemail only)
TDD Number: (203)
797-9590
Fax: (203)
798-2291
http://www.rarediseases.org/
Mega Cisterna Magna
http://www.ninds.nih.gov/disorders/dandywalker/dandywalker.htm
Dandy-Walker Alliance
4422 Clearbrook Lane
Kensington, Maryland 20895
Phone 1: +1 301 919 2653
Phone 2: +1 321 446 0349
http://www.dandy-walker.org/
Guardians of Hydrocephalus Research Foundation
2618 Avenue Z
Brooklyn, NY
11235
Phone: (718) 743-4473
Fax: (718) 743-1171
http://ghrf.homestead.com/ghrf.html
Hydrocephalus Association
870 Market Street, Suite 705
San Francisco, CA 94102
Phone: (415) 732-7040 or toll-free (888) 598-3789
Fax: (415) 732-7044
http://www.hydroassoc.org/default.htm
The March of Dimes
1275 Mamaroneck Avenue
White Plains, NY 10605
Phone: 914-428-7100 888-MODIMES (663-4637)
Fax: 914-428-8203
http://www.marchofdimes.com
National Hydrocephalus Foundation
12413 Centralia Road
Lakewood, CA 90715-1623
Phone: (800) 857-3434 or (562) 402-3523
Fax: (562) 924-6666
http://www.nhonline.org
National Organization for Rare Disorders
55 Kenosia Avenue
PO Box 1968
Danbury, CT 06813-1968
Phone:
(203)
744-0100
or
(800)
999-6673
(voicemail only)
TDD Number: (203)
797-9590
Fax: (203)
798-2291
http://www.rarediseases.org/
Megalencephaly
http://www.ninds.nih.gov/disorders/megalencephaly/megalencephaly.htm
Genetic Alliance, Inc.
4301 Connecticut Ave. NW Suite 404
Washington, D.C. 20008-2369
Phone: (202) 966-5557
Fax: (202) 966-8553
http://www.geneticalliance.org
Hemimegalencephaly Family Support Network
http://www.hemimegalencephaly.com/
The March of Dimes
1275 Mamaroneck Avenue
White Plains, NY 10605
Phone: 914-428-7100 888-MODIMES (663-4637)
Fax: 914-428-8203
http://www.marchofdimes.com
National Organization for Rare Disorders
55 Kenosia Avenue
PO Box 1968
Danbury, CT 06813-1968
Phone:
(203)
744-0100
or
(800)
999-6673
(voicemail only)
TDD Number: (203)
797-9590
Fax: (203)
798-2291
http://www.rarediseases.org/
Microcephaly
http://www.ninds.nih.gov/disorders/microcephaly/microcephaly.htm
National
Organization for Rare Disorders
55 Kenosia Avenue
PO Box 1968
Danbury, CT 06813-1968
Phone: (203)
744-0100
or
(800)
999-6673
(voicemail only)
TDD Number: (203)
797-9590
Fax: (203)
798-2291
http://www.rarediseases.org/
Multiple Sclerosis
http://www.msfacts.org/info_faq.php
National Multiple Sclerosis Society
733 Third Avenue
New York, NY 10017
Phone: (800) FIGHT-MS (800-344-4867)
http://www.nmss.org/
Nonverbal Learning
Disorders
http://www.nldontheweb.org/little_1.htm
Children and Adults with Attention-Deficit/Hyperactivity Disorder
(CHADD)
8181 Professional Place,
Suite 150
Landover, MD 20785
Phone: (301) 306-7070
Fax: (301) 306-7090
http://www.chadd.org/AM/Template.cfm?Section=Home
International Dyslexia Association
27 8600 LaSalle Road
Chester Building, Ste. 382
Baltimore, MD 21286-2044
Phone: 410-296-0232 800-ABCD123
Fax: 410-321-5069
http://www.interdys.org
LD (learning disabilities) Online
http://www.ldonline.org
Learning Disabilities Association of America
4156 Library Road
Suite 1
Pittsburgh, PA 15234-1349
Phone: 412-341-1515
Fax: 412-344-0224
http://www.ldaamerica.org
National Center for Learning Disabilities
381 Park Avenue South
Suite 1401
New York, NY 10016
Phone: (888) 575-7373 or (212) 545-7510
Fax: (212) 545-9665
http://www.ld.org
NLD (nonverbal learning disorders or disabilities) on the Web!
http://www.nldontheweb.org
Nonverbal Learning Disorders Association
507 Hopmeadow Street
Simsbury, CT 06070
Phone: (860) 658-5522
Fax: (860) 658-6688
http://www.nsastutter.org/index.php
Obsessive Compulsive Disorder
http://www.nimh.nih.gov/publicat/ocdfacts.cfm
Anxiety Disorders Association of America
8730 Georgia Ave., Suite 600
Silver Spring,
MD
20910
Phone: (240)
485-1001
Fax: (240)
485-1035
http://www.adaa.org/
NARSAD:
The Mental Health Research Association
60 Cutter Mill Road, Suite 404
Great
Neck,
NY
11021
Phone: (516)
829-0091
or
(800)
829-8289
Fax: (516)487-6930
http://www.narsad.org/
NARSAD
Artworks
P.O. Box 941
La
Habra,
CA
90633-0941
Phone: (714)
529-5571
or
(800)
607-2599
Fax: (714)
990-0791
https://narsadartworks.org/Default.aspx
National
Alliance on Mental Illness
Colonial Place Three
2107 Wilson Blvd., Suite 300
Arlington, VA 22201-3042
Phone: (703)
524-7600
Fax: (703)
524-9094
TDD: (703)
516-7227
http://www.nami.org/
Obsessive Compulsive Foundation
676 State Street
New Haven,
CT
06511
Phone: (203)
401-2070
Fax: (203)
401-2076
http://www.ocfoundation.org/
The
Tourette Syndrome Association, Inc.
42-40 Bell Blvd.
Bayside, NY 11361
Phone: (718)
224-2999
Fax: (718)
279-9596
http://www.tsa-usa.org/
Ohtahara Syndrome
http://www.ninds.nih.gov/disorders/ohtahara/ohtahara.htm
National Organization for Rare Disorders
55 Kenosia Avenue
PO Box 1968
Danbury, CT 06813-1968
Phone:
(203)
744-0100
or
(800)
999-6673
(voicemail only)
TDD Number: (203)
797-9590
Fax: (203)
798-2291
http://www.rarediseases.org/
Ohtahara
Syndrome Self-Support Group (Ohtahara Syndrome online support and
advocacy)
http://www.ohtaharasyndrome.org
Panic Disorder
http://www.nimh.nih.gov/publicat/panicfacts.cfm
Anxiety Disorders Association of America
8730 Georgia Ave., Suite 600
Silver Spring,
MD
20910
Phone: (240)
485-1001
Fax: (240)
485-1035
http://www.adaa.org/
NARSAD:
The Mental Health Research Association
60 Cutter Mill Road, Suite 404
Great
Neck,
NY
11021
Phone: (516)
829-0091
or
(800)
829-8289
Fax: (516)487-6930
http://www.narsad.org/
NARSAD
Artworks
P.O. Box 941
La
Habra,
CA
90633-0941
Phone: (714)
529-5571
or
(800)
607-2599
Fax: (714)
990-0791
https://narsadartworks.org/Default.aspx
National
Alliance on Mental Illness
Colonial Place Three
2107 Wilson Blvd., Suite 300
Arlington, VA 22201-3042
Phone: (703)
524-7600
Fax: (703)
524-9094
TDD: (703)
516-7227
http://www.nami.org/
Parkinson's Disease
http://www.michaeljfox.org/parkinsons/index.php
The Michael J. Fox Foundation for Parkinson’s Research
Grand Central Station
P.O. Box 4777
New York,
NY
10163
Phone: (800)
708-7644
http://www.michaeljfox.org/
Parkinson’s Disease Foundation
1359 Broadway,
Suite
1509
New York,
NY
10018
Phone: (800)
457-6676
or
(212)
923-4700
Fax: (212)
923-4778
http://www.pdf.org/
Phobias
http://healthyminds.org/multimedia/phobias.pdf
Anxiety Disorders Association of America
8730 Georgia Ave., Suite 600
Silver Spring,
MD
20910
Phone: (240)
485-1001
Fax: (240)
485-1035
http://www.adaa.org/
NARSAD:
The Mental Health Research Association
60 Cutter Mill Road, Suite 404
Great
Neck,
NY
11021
Phone: (516)
829-0091
or
(800)
829-8289
Fax: (516)487-6930
http://www.narsad.org/
NARSAD
Artworks
P.O. Box 941
La
Habra,
CA
90633-0941
Phone: (714)
529-5571
or
(800)
607-2599
Fax: (714)
990-0791
https://narsadartworks.org/Default.aspx
National
Alliance on Mental Illness
Colonial Place Three
2107 Wilson Blvd., Suite 300
Arlington, VA 22201-3042
Phone: (703)
524-7600
Fax: (703)
524-9094
TDD: (703)
516-7227
http://www.nami.org/
Post-partum Depression
http://www.nmha.org/infoctr/factsheets/postpartum.cfm
Postpartum Support International
Jane Honikman, Founding Director
Trish Bielsky, Office Manager
927 N. Kellogg Avenue
Santa Barbara, CA 93111
Phone:
(805)
967-7636
Fax: (805)
967-0608
http://www.postpartum.net/
Post-traumatic Stress Disorder
http://www.ncptsd.va.gov/facts/general/fs_what_is_ptsd.html
PTSD (Post Traumatic Stress Disorder) Alliance
http://www.ptsdalliance.org/home2.html
Progressive
Supranuclear Palsy
http://www.ninds.nih.gov/disorders/psp/detail_psp.htm
BRAIN (Brain Resource and Information Network of the National
Institute of Neurological Disorders and Stroke)
P.O. Box 5801
Bethesda, MD 20824
Phone: (800) 352-9424
http://www.ninds.nih.gov
CUREPSP (Society for Progressive Supranuclear Palsy)
Executive Plaza III
11350 McCormick Road, Ste. 906
Hunt Valley, MD 21031
Phone: (410) 785-7004 or (800) 457-4777
Fax: (410) 785-7009
http://www.curepsp.org
WE MOVE (Worldwide Education & Awareness for Movement Disorders)
204 West 84th Street
New York, NY 10024
Phone: (212) 875-8312 or (212) 875-8312
Fax: (212) 875-8389
http://www.wemove.org
Rasmussen's Encephalitis
http://www.ninds.nih.gov/disorders/rasmussen/rasmussen.htm
American Autoimmune Related Disease Association
22100 Gratiot Avenue
Eastpointe, MI 48201
Phone: (586) 776-3900 (800) 598-4668
Fax: (586) 776-3903
http://www.aarda.org
Epilepsy Foundation
8301 Professional Place
Landover, MD 20785-7223
Phone: (800)
332-1000
http://www.epilepsyfoundation.org/aboutus/
Encephalitis Society
7B Saville Steet
Malton, North Yorkshire, YO17 7LL
United Kingdom
Phone: (44) 1652 625 583
http://www.encephalitis.info
MUMS (Mothers United for Moral Support, Inc.)
150 Custer Court
Green Bay, WI 54301
Phone: (920) 336-5333
http://www.netnet.net/mums/
National Organization for Rare Disorders
55 Kenosia Avenue
PO Box 1968
Danbury, CT 06813-1968
Phone:
(203)
744-0100
or
(800)
999-6673
(voicemail only)
TDD Number: (203)
797-9590
Fax: (203)
798-2291
http://www.rarediseases.org/
National Institute of Neurological Disorders and Stroke
NIH Neurological Institute
P.O. Box 5801
Bethesda, MD 20824
Phone: (800)
352-9424
or
(301)
496-5751
TTY : (301)
468-5981
http://www.ninds.nih.gov/
Rasmussen's Syndrome and Hemispherectomy Support Network
8235 Lethbridge Road
Millersville, MD 21108
Phone: (410) 987-5221
The Arc
of the United States
1010 Wayne Avenue
Suite 650
Silver Spring, MD 20910
Phone: (301) 565-3842
Fax: (301) 565-3843 or -5342
http://www.thearc.org
Rett Syndrome
http://www.rettsyndrome.org/content.asp?pl=140&sl=162&contentid=162
Autism Society of
America
7910 Woodmont Avenue, Suite 300
Bethesda, MD 20814-3067
Phone:
(301)
657-0881
or (800) 3AUTISM
Fax: (301)
657-0869
http://www.autism-society.org
Cure
Autism Now Foundation
5455 Wilshire Boulevard, Suite 2250
Los Angeles,
CA
90036-4272
Phone: (323)
549-0500
Fax: (323)
549-0547
http://www.cureautismnow.org/
International Rett Syndrome Association
9121 Piscataway Road, #2B
Clinton, MD 20735
Phone: (800) 818-RETT
Fax:
(301)
856-3336
http://www.rettsyndrome.org/
Schizoaffective Disorder
http://www.npi.ucla.edu/ssg/schizoaffective.htm
Schizophrenia.com (Schizophrenia online support and advocacy)
http://www.schizophrenia.com/
Schizophrenia Research Forum (Schizophrenia online research forum)
http://www.schizophreniaforum.org/abo/miss/default.asp/
NARSAD:
The Mental Health Research Association
60 Cutter Mill Road, Suite 404
Great
Neck,
NY
11021
Phone: (516)
829-0091
or
(800)
829-8289
Fax: (516)487-6930
http://www.narsad.org/
NARSAD
Artworks
P.O. Box 941
La
Habra,
CA
90633-0941
Phone: (714)
529-5571
or
(800)
607-2599
Fax: (714)
990-0791
https://narsadartworks.org/Default.aspx
National
Alliance on Mental Illness
Colonial Place Three
2107 Wilson Blvd., Suite 300
Arlington, VA 22201-3042
Phone: (703)
524-7600
Fax: (703)
524-9094
TDD: (703)
516-7227
http://www.nami.org/
Schizophrenia
http://www.nimh.nih.gov/publicat/schizoph.cfm
Schizophrenia.com (Schizophrenia online support and advocacy)
http://www.schizophrenia.com/
Schizophrenia Research Forum (Schizophrenia online research forum)
http://www.schizophreniaforum.org/abo/miss/default.asp/
NARSAD:
The Mental Health Research Association
60 Cutter Mill Road, Suite 404
Great
Neck,
NY
11021
Phone: (516)
829-0091
or
(800)
829-8289
Fax: (516)487-6930
http://www.narsad.org/
NARSAD
Artworks
P.O. Box 941
La
Habra,
CA
90633-0941
Phone: (714)
529-5571
or
(800)
607-2599
Fax: (714)
990-0791
https://narsadartworks.org/Default.aspx
National
Alliance on Mental Illness
Colonial Place Three
2107 Wilson Blvd., Suite 300
Arlington, VA 22201-3042
Phone: (703)
524-7600
Fax: (703)
524-9094
TDD: (703)
516-7227
http://www.nami.org/
Sensory
Processing Disorder
http://www.thespiralfoundation.org/pdfs/Fact Sheet for Educators.pdf
Sensory Processing Disorder Foundation
5655 S. Yosemite St., Ste 305
Greenwood Village, CO 80111
Phone: 303.794.1182
Fax: 303.322.5550
http://www.spdfoundation.net/
The Spiral Foundation
124 Watertown Street
Watertown, MA 02472
Phone (617) 923-4410
http://www.thespiralfoundation.org/index.html
National Organization for Rare Disorders
55 Kenosia Avenue
PO Box 1968
Danbury, CT 06813-1968
Phone:
(203)
744-0100
or
(800)
999-6673
(voicemail only)
TDD Number: (203)
797-9590
Fax: (203)
798-2291
http://www.rarediseases.org/
Septo Optic Dysplasia
http://www.ninds.nih.gov/disorders/septo_optic_dysplasia/septo_optic_dysplasia.htm
Focus Families
228 E. Palomino Ct.
Gilbert, AZ 85296
Phone: (866) 362-8750
Fax: (866) 362-8750
http://www.focusfamilies.org
Magic Foundation
6645 West North Avenue
Oak Park, IL 60302
Phone: (708) 383-0808 or (800) 362-4423
Fax: (708) 383-0899
http://www.magicfoundation.org
National Organization for Rare Disorders
55 Kenosia Avenue
PO Box 1968
Danbury, CT 06813-1968
Phone:
(203)
744-0100
or
(800)
999-6673
(voicemail only)
TDD Number: (203)
797-9590
Fax: (203)
798-2291
http://www.rarediseases.org/
Sleep Disorders
http://www.sleepfoundation.org/hottopics/index.php?secid=49
National Sleep Foundation
1522 K Street, NW, Suite 500
Washington, DC 20005
Phone:
(202)
347-3471
Fax: (202)
347-3472
http://www.sleepfoundation.org/joinus/index.php
Smith-Magenis Syndrome
http://www.smithmagenis.org/WhatisSMS/overview_ssynd.htm
National Organization for Rare Disorders
55 Kenosia Avenue
PO Box 1968
Danbury, CT 06813-1968
Phone:
(203)
744-0100
or
(800)
999-6673
(voicemail only)
TDD Number: (203)
797-9590
Fax: (203)
798-2291
http://www.rarediseases.org/
PRiSMS
(Parents and Researchers Interested in Smith-Magenis Syndrome)
P.O. Box 741914
Dallas, TX 75374-1914
Phone: (972)
231-0035
Fax: (413)
826-6539
http://www.smithmagenis.org/start.htm
Stroke
http://www.cdc.gov/Stroke/stroke_facts.htm
National Institute of Neurological Disorders and Stroke
NIH Neurological Institute
P.O. Box 5801
Bethesda, MD 20824
Phone: (800)
352-9424
or
(301)
496-5751
TTY : (301)
468-5981
http://www.ninds.nih.gov/
Stuttering
http://www.nidcd.nih.gov/health/voice/stutter.asp
National Stuttering Association
119 W. 40th Street,
14th Floor
New York,
NY
10018
Phone: (800) We Stutter (800-937-8888)
http://www.nsastutter.org/index.php
Tourette Syndrome
http://www.cdc.gov/ncbddd/tourette/default.htm
The Tourette Syndrome Association, Inc.
42-40 Bell Blvd.
Bayside, NY 11361
Phone: (718)
224-2999
Fax: (718)
279-9596
http://www.tsa-usa.org/
Transmissible Spongiform Encephalopathies
http://www.ninds.nih.gov/disorders/tse/tse.htm
Williams Syndrome
http://www.williams-syndrome.org/forparents/whatiswilliams.html
Williams Syndrome Association
P.O. Box 297
Clawson, MI 48017-0297
Phone: (248)
244-2229
or
(800)
806-1871
Fax: (248)
244-2230
http://www.williams-syndrome.org/about/index.html