Addiction/Substance Abuse/Dependence

http://www.nmha.org/substance/factsheet.cfm
 

National Council on Alcoholism and Drug Dependence

22 Cortlandt Street, Suite 801
New York, NY 10007-3128
Phone: (212) 269-7797
Fax: (212) 269-7510
Help Line: (800) NCA-CALL (24-hour Affiliate referral)
http://www.ncadd.org/index.html
 

NARSAD: The Mental Health Research Organization

60 Cutter Mill Road, Suite 404
Great Neck, NY 11021
Phone: (516) 829-0091 or (800) 829-8289
Fax: (516)487-6930
http://www.narsad.org/
 

NARSAD Artworks

P.O. Box 941
La Habra, CA 90633-0941
Phone: (714) 529-5571 or (800) 607-2599
Fax: (714) 990-0791
https://narsadartworks.org/Default.aspx
 

National Alliance on Mental Illness

Colonial Place Three
2107 Wilson Blvd., Suite 300
Arlington, VA 22201-3042
Phone: (703) 524-7600
Fax: (703) 524-9094
TDD: (703) 516-7227
http://www.nami.org/
 

National Council on Alcoholism and Drug Dependence

22 Cortlandt Street, Suite 801
New York, NY 10007-3128
Phone: (212) 269-7797
Fax: (212) 269-7510
Help Line: (800) NCA-CALL (24-hour Affiliate referral)
http://www.ncadd.org/index.html
 

National Organization on Fetal Alcohol Syndrome

900 17th Street, NW, Suite 910
Washington, DC 20006
Phone: (202) 785-4585, +1 (800) 66NOFAS
Fax: (202) 466-6456
http://www.nofas.org/about/
 

Racing for Recovery

6936 Clare Ct.
Sylvania, OH 43560
Phone: (419) 824-8462
http://www.racingforrecovery.com/
 

Substance Abuse and Mental Health Services Administration

1 Choke Cherry Road
Rockville, MD 20857
Phone: (240) 276-2000
Fax: (240) 276-2010
http://www.samhsa.gov/
 

Adrenoleukodystrophy (see Leukodystrophy)

http://www.ninds.nih.gov/disorders/adrenoleukodystrophy/adrenoleukodystrophy.htm



Agenesis of the Corpus Callosum/Corpus Callosum Disorders

http://www.ninds.nih.gov/disorders/agenesis/agenesis.htm


ACC (Agenesis of the Corpus Callosum) Network

5749 Merrill Hall, Room 118
College of Education and Human Development
University of Maine
Orono, ME 04469-5749
Phone: (207) 581-3119
Fax: (207) 581-3120
http://www.umaine.edu/edhd/research/accnetwork.htm
 

Angels Around the World (Agenesis of the Corpus Callosum online support and advocacy)

http://members.tripod.com/~scenicbeauty/AngelsAroundTheWorld.html
 

The March of Dimes

1275 Mamaroneck Avenue
White Plains, NY 10605
Phone: 914-428-7100 888-MODIMES (663-4637)
Fax: 914-428-8203
http://www.marchofdimes.com
 

National Organization of Disorders of the Corpus Callosum

PMB 363
18032-C Lemon Drive
Yorba Linda, CA 92886
Phone: (714) 747-0063
Fax: (714) 693-0808
http://www.nodcc.org/
 

National Organization for Rare Disorders

55 Kenosia Avenue
PO Box 1968
Danbury, CT 06813-1968
Phone: (203) 744-0100 or (800) 999-6673 (voicemail only)
TDD Number: (203) 797-9590
Fax: (203) 798-2291
http://www.rarediseases.org/
 

Alzheimer’s Disease

http://www.nmha.org/infoctr/factsheets/101.cfm

Alzheimer’s Association

National Office
225 N. Michigan Ave., Fl. 17
Chicago, IL 60601-7633
Phone: (800) 272-3900
http://www.alz.org/
 

Amyotrophic Lateral Sclerosis (ALS/Lou Gehrig's Disease)

http://www.alsa.org/als/facts.cfm

ALS Association

27001 Agoura Road, Suite 150
Calabasas Hills, CA 91301-5104
Phone: (818) 880-9007
Fax: (818) 880-9006
http://www.alsa.org/
 

Anxiety Disorders

http://www.nmha.org/camh/anxiety/anxdis.cfm

Anxiety Disorders Association of America

8730 Georgia Ave., Suite 600
Silver Spring, MD 20910
Phone: (240) 485-1001
Fax: (240) 485-1035
http://www.adaa.org/
 

NARSAD: The Mental Health Research Association

60 Cutter Mill Road, Suite 404
Great Neck, NY 11021
Phone: (516) 829-0091 or (800) 829-8289
Fax: (516)487-6930
http://www.narsad.org/
 

NARSAD Artworks

P.O. Box 941
La Habra, CA 90633-0941
Phone: (714) 529-5571 or (800) 607-2599
Fax: (714) 990-0791
https://narsadartworks.org/Default.aspx
 

National Alliance on Mental Illness

Colonial Place Three
2107 Wilson Blvd., Suite 300
Arlington, VA 22201-3042
Phone: (703) 524-7600
Fax: (703) 524-9094
TDD: (703) 516-7227
http://www.nami.org/
 

National Association of Anorexia Nervosa and Associated Disorders

P.O. Box 7
Highland Park, IL 60035
Phone: (847) 831-3438
Fax: (847) 433-4632
http://www.anad.org/site/anadweb/
 

National Eating Disorders Association

603 Stewart St., Suite 803
Seattle, WA 98101
Phone: (206) 382-3587
Help Line: (800) 931-2237
http://www.nationaleatingdisorders.org/p.asp?WebPage_ID=331
 

Obsessive Compulsive Foundation

676 State Street
New Haven, CT 06511
Phone: (203) 401-2070
Fax: (203) 401-2076
http://www.ocfoundation.org/
 

PTSD (Post Traumatic Stress Disorder) Alliance

http://www.ptsdalliance.org/home2.html
 

Arachnoid Cyst

http://www.ninds.nih.gov/disorders/arachnoid_cysts/arachnoid_cysts.htm

National Organization for Rare Disorders

55 Kenosia Avenue
PO Box 1968
Danbury, CT 06813-1968
Phone: (203) 744-0100 or (800) 999-6673 (voicemail only)
TDD Number: (203) 797-9590
Fax: (203) 798-2291
http://www.rarediseases.org/




Arnold-Chiari Malformation

http://www.ninds.nih.gov/disorders/chiari/chiari.htm

National Organization for Rare Disorders

55 Kenosia Avenue
PO Box 1968
Danbury, CT 06813-1968
Phone: (203) 744-0100 or (800) 999-6673 (voicemail only)
TDD Number: (203) 797-9590
Fax: (203) 798-2291
http://www.rarediseases.org/
 

Ataxia Telangiectasia
 http://www.nlm.nih.gov/medlineplus/ency/article/001394.htm

Ataxia Telangiectasia Children's Project (A-T Children's Project)

668 South Military Trail
Deerfield Beach Florida 33442-3023
Phone: (954) 481-6611 or (800) 543-5728
Fax: (954) 725-1153
http://www.communityatcp.org/NETCOMMUNITY/Page.aspx?pid=567&srcid=-2

National Ataxia Foundation

2600 Fernbrook Lane Suite 119
Minneapolis, MN 55447-4752
Phone: (763)553-0020
Fax: (763) 553-0167
http://www.ataxia.org/about/national-ataxia-foundation.aspx

Attention Deficit Disorder

 http://www.nmha.org/infoctr/factsheets/71.cfm

Children and Adults with Attention Deficit Hyperactivity Disorder

8181 Professional Place, Suite 150
Landover, MD 20785
Phone: (301) 306-7070
Fax: (301) 306-7090
http://www.chadd.org/AM/Template.cfm?Section=Home
 

Autism/Asperger Syndrome/Pervasive Developmental Disorders

http://www.nmha.org/infoctr/factsheets/73.cfm

Autism Society of America

7910 Woodmont Avenue, Suite 300
Bethesda, MD 20814-3067
Phone: (301) 657-0881 or (800) 3AUTISM
Fax: (301) 657-0869
http://www.autism-society.org
 

Autism Speaks (previously Cure Autism Now Fdn)

2 Park Avenue 11th Floor
New York, NY
Phone: (212) 252-8584 or (888) 288-4462
Fax: (212) 252-8676
http://www.autismspeaks.org/
 

International Rett Syndrome Association

9121 Piscataway Road, #2B
Clinton, MD 20735
Phone: (800) 818-RETT
Fax: (301) 856-3336
http://www.rettsyndrome.org/
 

Bipolar Disorder

 http://www.nmha.org/infoctr/factsheets/25.cfm

Bipolar Focus (Bipolar disorder online support and advocacy)

http://www.pendulum.org/index.html
 

Child and Adolescent Bipolar Foundation

820 Davis St., Ste. 520
Evanston, IL 60201
Phone: (847) 492-8519
Fax: (847) 492-8520
www.bpkids.org
 

Depression and Bipolar Support Alliance

730 N. Franklin Street, Suite 501
Chicago, IL 60610-7224 USA
Phone: (800) 826-3632
Fax: (312) 642-7243
http://www.dbsalliance.org/advocacy/advocate.html
 

NARSAD: The Mental Health Research Association

60 Cutter Mill Road, Suite 404
Great Neck, NY 11021
Phone: (516) 829-0091 or (800) 829-8289
Fax: (516)487-6930
http://www.narsad.org/
 

NARSAD Artworks

P.O. Box 941
La Habra, CA 90633-0941
Phone: (714) 529-5571 or (800) 607-2599
Fax: (714) 990-0791
https://narsadartworks.org/Default.aspx
 

National Alliance on Mental Illness

Colonial Place Three
2107 Wilson Blvd., Suite 300
Arlington, VA 22201-3042
Phone: (703) 524-7600
Fax: (703) 524-9094
TDD: (703) 516-7227
http://www.nami.org/
 

Borderline Personality Disorder

http://www.nimh.nih.gov/publicat/bpd.cfm?textSize=L

Borderline Personality Disorder Research Foundation

340 W. 12th Street
New York, NY 10014
Phone: (212) 421-5244
Fax: (212) 421-5243
http://www.borderlineresearch.org/index.html
 

BPDCentral.com (Borderline personality disorder online support and advocacy)

http://www.bpdcentral.com/index.shtml
 

NARSAD: The Mental Health Research Association

60 Cutter Mill Road, Suite 404
Great Neck, NY 11021
Phone: (516) 829-0091 or (800) 829-8289
Fax: (516)487-6930
http://www.narsad.org/
 

NARSAD Artworks

P.O. Box 941
La Habra, CA 90633-0941
Phone: (714) 529-5571 or (800) 607-2599
Fax: (714) 990-0791
https://narsadartworks.org/Default.aspx
 

National Alliance on Mental Illness

Colonial Place Three
2107 Wilson Blvd., Suite 300
Arlington, VA 22201-3042
Phone: (703) 524-7600
Fax: (703) 524-9094
TDD: (703) 516-7227
http://www.nami.org/
 

Brain Injury

http://www.cdc.gov/ncipc/tbi/TBI.htm

Brain Injury Association of America

8201 Greensboro Drive, Suite 611
McLean, VA 22102
Phone: (703) 761-0750 or (800) 444-6443
http://www.biausa.org/index.html
 

Brain Injury Resource Foundation

1841 Montreal Road, Suite 220
Tucker, GA 30084
Phone: (678) 937-1555 or (888) 334-2424
Fax: (678)937-1557
http://www.birf.info/index.shtml
 

Brain Tumor

 http://www.tbts.org/itemDetail.asp?categoryID=383&itemID=16635

American Cancer Society (National Headquarters)

1599 Clifton Road, NE
Atlanta, GA 30329
Phone: (800) ACS-2345
http://www.cancer.org
 

The Brain Tumor Awareness Organization

987 Dacusville Road
Marietta, SC  29661
Phone: (864) 836-4609
http://www.braintumorawareness.org

Children’s Brain Tumor Foundation

274 Madison Avenue, Suite 1004
New York, NY 10016
http://www.cbtf.org/about.html
 

National Brain Tumor Society

124 Watertown Street, Suite 2D
Watertown, MA 02472
Phone: (800) 770-8287, (617) 924-9997 (East Coast), (415) 834-9970 (West Coast)
Fax: (617) 924-9998
http://www.braintumor.org/
 

North American Brain Tumor Coalition

Elizabeth Goss, Esq., NABTC Counsel, Ropes & Gray, LLP
One Metro Center
700 12th Street, NW, Suite 900
Washington, DC 20005
Phone: (202) 508-4670
Fax: (202) 508-4650
http://www.nabraintumor.org/about.html

 

Central Pain Syndrome

http://www.ninds.nih.gov/disorders/central_pain/central_pain.htm

American Chronic Pain Association

P.O. Box 850
Rocklin, CA  95677-0850
Phone: (800) 533-3231 (916) 632-0922
Fax: (916) 652-8190
http://www.theacpa.org


American Pain Foundation

201 North Charles Street Suite 701
Baltimore, MD  21201
Phone: (888) 615-PAIN (7246)
Fax: (410) 385-1832
http://www.painfoundation.org


Central Pain Syndrome Alliance

http://www.centralpain.org/index.html


National Foundation for the Treatment of Pain

P.O. Box 70045
Houston, TX  77270
Phone: (713) 862-9332
Fax: (713) 862-9346
http://www.paincare.org



Cerebral Palsy

http://www.marchofdimes.com/professionals/681_1208.asp

United Cerebral Palsy

1660 L Street NW, Suite 700
Washington, DC 20036
Phone: (800) 872-5827 or (202) 776-0406
Fax: (202) 776-0414
http://www.ucp.org/
 

The March of Dimes

1275 Mamaroneck Avenue
White Plains, NY 10605
Phone: 914-428-7100 888-MODIMES (663-4637)
Fax: 914-428-8203
http://www.marchofdimes.com
 

Cephalic Disorders

http://www.ninds.nih.gov/disorders/cephalic_disorders/cephalic_disorders.htm#What_is


Hydranencephaly.com (Hydranencephaly online support and advocacy)

http://www.hydranencephaly.com/index.html
 

The Lissencephaly Network Inc.

10408 Bitterroot Court
Fort Wayne, IN 46804
Phone: (260) 432-4310
Fax: (260) 432-4310
http://www.lissencephaly.org/
 

The March of Dimes

1275 Mamaroneck Avenue
White Plains, NY 10605
Phone: 914-428-7100 888-MODIMES (663-4637)
Fax: 914-428-8203
http://www.marchofdimes.com
 

National Organization for Rare Disorders

55 Kenosia Avenue
PO Box 1968
Danbury, CT 06813-1968
Phone: (203) 744-0100 or (800) 999-6673 (voicemail only)
TDD Number: (203) 797-9590
Fax: (203) 798-2291
http://www.rarediseases.org/
 

Chronic Fatigue and Immune Dysfunction Syndrome

http://www.cfids.org/about-cfids/fact-sheet.asp

Chronic Fatigue and Immune Dysfunction Syndrome Association of America

P.O. Box 220398
Charlotte, NC 28222-0398
http://www.cfids.org
 

International Association of Chronic Fatigue Syndrome

27 N. Wacker Drive Suite 416
Chicago, IL 60606
Phone: (847) 258-7248
Fax: (847) 579-0975
http://www.aacfs.org
 

National Fibromyalgia Association

Lynne Matallana, Director
2200 Glassell Street, Suite A
Orange, CA 92865
Phone: (714) 921-0150
Fax: (714) 921-6920
http://www.fmaware.org
 

National Fibromyalgia Research Association

P.O. Box 500
Salem, OR 97308
http://www.nfra.net
 

Colpocephaly

 http://www.ninds.nih.gov/disorders/colpocephaly/Colpocephaly.htm

National Organization for Rare Disorders

55 Kenosia Avenue
PO Box 1968
Danbury, CT 06813-1968
Phone: (203) 744-0100 or (800) 999-6673 (voicemail only)
TDD Number: (203) 797-9590
Fax: (203) 798-2291
http://www.rarediseases.org/
 

Creutzfeldt - Jakob Disease

http://www.cjdfoundation.org/fact.html

Creutzfeldt - Jakob Disease Foundation

P.O. Box 5312
Akron, OH 44334 or
286 N. Cleveland-Massillon Rd., Suite N
Akron, OH 44333
Phone: (330) 665-5590
Help Line: (800) 659-1991
Fax: (330) 668-2474
http://www.cjdfoundation.org/
 

Dandy-Walker Syndrome

http://www.ninds.nih.gov/disorders/dandywalker/dandywalker.htm

Dandy-Walker Alliance

10325 Kensington Pkwy, Suite 384
Kensington, Maryland 20895
Phone: (877) Dandy-Walker
http://www.dandy-walker.org/
 

Guardians of Hydrocephalus Research Foundation

2618 Avenue Z
Brooklyn, NY 11235
Phone: (718) 743-4473
Fax: (718) 743-1171
http://ghrf.homestead.com/ghrf.html
 

Hydrocephalus Association

870 Market Street, Suite 705
San Francisco, CA 94102
Phone: (415) 732-7040 or toll-free (888) 598-3789
Fax: (415) 732-7044
http://www.hydroassoc.org/default.htm
 

The March of Dimes

1275 Mamaroneck Avenue
White Plains, NY 10605
Phone: 914-428-7100 888-MODIMES (663-4637)
Fax: 914-428-8203
http://www.marchofdimes.com

National Hydrocephalus Foundation

12413 Centralia Road
Lakewood, CA 90715-1623
Phone: (800) 857-3434 or (562) 402-3523
Fax: (562) 924-6666
http://www.nhonline.org


National Organization for Rare Disorders

55 Kenosia Avenue
PO Box 1968
Danbury, CT 06813-1968
Phone: (203) 744-0100 or (800) 999-6673 (voicemail only)
TDD Number: (203) 797-9590
Fax: (203) 798-2291
http://www.rarediseases.org/

Depression

http://www.dbsalliance.org/info/depression.html

Depression and Bipolar Support Alliance

730 N. Franklin Street, Suite 501
Chicago, IL 60610-7224 USA
Phone: (800) 826-3632
Fax: (312) 642-7243
http://www.dbsalliance.org/advocacy/advocate.html
 

NARSAD: The Mental Health Research Association

60 Cutter Mill Road, Suite 404
Great Neck, NY 11021
Phone: (516) 829-0091 or (800) 829-8289
Fax: (516)487-6930
http://www.narsad.org/
 

NARSAD Artworks

P.O. Box 941
La Habra, CA 90633-0941
Phone: (714) 529-5571 or (800) 607-2599
Fax: (714) 990-0791
https://narsadartworks.org/Default.aspx
 

National Alliance on Mental Illness

Colonial Place Three
2107 Wilson Blvd., Suite 300
Arlington, VA 22201-3042
Phone: (703) 524-7600
Fax: (703) 524-9094
TDD: (703) 516-7227
http://www.nami.org/
 

Dystonia

http://www.nlm.nih.gov/medlineplus/dystonia.html

Dystonia Medical Research Foundation

One East Wacker Drive, Suite 2430
Chicago, Illinois 60601-1905
Phone: (312) 755-0198 or Toll Free (800)-377-DYST (3978)
http://www.dystonia-foundation.org/
 

National Spasmodic Torticollis Association

9920 Talbert Avenue
Fountain Valley, CA 92708
Phone: (714) 378-9837 or Support (800) 487-8385
http://www.torticollis.org/

Eating Disorders

http://www.nimh.nih.gov/publicat/eatingdisorders.cfm

Anxiety Disorders Association of America

8730 Georgia Ave., Suite 600
Silver Spring, MD 20910
Phone: (240) 485-1001
Fax: (240) 485-1035
http://www.adaa.org/
 

NARSAD: The Mental Health Research Association

60 Cutter Mill Road, Suite 404
Great Neck, NY 11021
Phone: (516) 829-0091 or (800) 829-8289
Fax: (516)487-6930
http://www.narsad.org/
 

NARSAD Artworks

P.O. Box 941
La Habra, CA 90633-0941
Phone: (714) 529-5571 or (800) 607-2599
Fax: (714) 990-0791
https://narsadartworks.org/Default.aspx
 

National Alliance on Mental Illness

Colonial Place Three
2107 Wilson Blvd., Suite 300
Arlington, VA 22201-3042
Phone: (703) 524-7600
Fax: (703) 524-9094
TDD: (703) 516-7227
http://www.nami.org/
 

National Association of Anorexia Nervosa and Associated Disorders

P.O. Box 7
Highland Park, IL 60035
Phone: (847) 831-3438
Fax: (847) 433-4632
http://www.anad.org/site/anadweb/
 

National Eating Disorders Association

603 Stewart St., Suite 803
Seattle, WA 98101
Phone: (206) 382-3587
Help Line: (800) 931-2237
http://www.nationaleatingdisorders.org/p.asp?WebPage_ID=331
 

Epilepsy

http://www.epilepsyfoundation.org/answerplace/

Epilepsy Foundation

8301 Professional Place
Landover, MD 20785-7223
Phone: (800) 332-1000
http://www.epilepsyfoundation.org/aboutus/
 

Fetal Alcohol Syndrome Spectrum Disorders

http://www.cdc.gov/ncbddd/fas/fasask.htm

National Council on Alcoholism and Drug Dependence

22 Cortlandt Street, Suite 801
New York, NY 10007-3128
Phone: (212) 269-7797
Fax: (212) 269-7510
Help Line: (800) NCA-CALL (24-hour Affiliate referral)
http://www.ncadd.org/index.html
 

National Organization on Fetal Alcohol Syndrome

900 17th Street, NW, Suite 910
Washington, DC 20006
Phone: (202) 785-4585, +1 (800) 66NOFAS
Fax: (202) 466-6456
http://www.nofas.org/about/
 

Fibromyalgia

http://www.nfra.net/

National Fibromyalgia Association

Lynne Matallana, Director
2200 Glassell Street, Suite A
Orange, CA 92865
Phone: (714) 921-0150
Fax: (714) 921-6920
http://www.fmaware.org
 

National Fibromyalgia Research Association

P.O. Box 500
Salem, OR 97308
http://www.nfra.net
 

HIV-Induced Dementia

 http://www.about-dementia.com/dementia/infectious-dementia.php

Holoprosencephaly

http://www.ninds.nih.gov/disorders/holoprosencephaly/holoprosencephaly.htm

Carter Centers for Research in Holoprosencephaly

c/o Texas Scottish Rite Hospital P.O. Box 190567
2222 Welborn Street
Dallas, TX 75219-9982
Phone: (214) 559-8411
Fax: (214) 559-8383
http://www.stanford.edu/group/hpe
 

National Organization for Rare Disorders

55 Kenosia Avenue
PO Box 1968
Danbury, CT 06813-1968
Phone: (203) 744-0100 or (800) 999-6673 (voicemail only)
TDD Number: (203) 797-9590
Fax: (203) 798-2291
http://www.rarediseases.org/
 

The Arc of the United States

1010 Wayne Avenue
Suite 650
Silver Spring, MD 20910
Phone: (301) 565-3842
Fax: (301) 565-3843 or -5342
http://www.thearc.org

Huntington's Disease

http://www.stanford.edu/group/hopes/basics/basichd/a1.html

Huntington’s Disease Advocacy Center

http://www.hdac.org/

 

Hydranencephaly

http://www.ninds.nih.gov/disorders/hydranencephaly/hydranencephaly.htm

Hydranencephaly.com (Hydranencephaly online support and advocacy)

http://www.hydranencephaly.com/index.html
 

National Organization for Rare Disorders

55 Kenosia Avenue
PO Box 1968
Danbury, CT 06813-1968
Phone: (203) 744-0100 or (800) 999-6673 (voicemail only)
TDD Number: (203) 797-9590
Fax: (203) 798-2291
http://www.rarediseases.org/
 

Hydrocephalus

http://www.ninds.nih.gov/disorders/hydrocephalus/detail_hydrocephalus.htm

Guardians of Hydrocephalus Research Foundation

2618 Avenue Z
Brooklyn, NY 11235
Phone: (718) 743-4473
Fax: (718) 743-1171
http://ghrf.homestead.com/ghrf.html.
 

Hydrocephalus Association

870 Market Street, Suite 705
San Francisco, CA 94102
Phone: (415) 732-7040 or toll-free (888) 598-3789
Fax: (415) 732-7044
http://www.hydroassoc.org/default.htm
 

Learning Disabilities

http://www.nifl.gov/nifl/facts/learning_disabilities.html
 

Children and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD)

8181 Professional Place, Suite 150
Landover, MD 20785
Phone: (301) 306-7070
Fax: (301) 306-7090
http://www.chadd.org/AM/Template.cfm?Section=Home


International Dyslexia Association

27 8600 LaSalle Road
Chester Building, Ste. 382
Baltimore, MD 21286-2044
Phone: 410-296-0232 800-ABCD123
Fax: 410-321-5069
http://www.interdys.org


LD (learning disabilities) Online

http://www.ldonline.org


Learning Disabilities Association of America

4156 Library Road
Suite 1
Pittsburgh, PA 15234-1349
Phone: 412-341-1515
Fax: 412-344-0224
http://www.ldaamerica.org

National Center for Learning Disabilities

381 Park Avenue South
Suite 1401
New York, NY 10016
Phone: (888) 575-7373 or (212) 545-7510
Fax: (212) 545-9665
http://www.ld.org

Leukodystrophy

http://www.ninds.nih.gov/disorders/leukodystrophy/leukodystrophy.htm

Genetic Alliance, Inc.

4301 Connecticut Ave. NW Suite 404
Washington, D.C.  20008-2369
Phone: (202) 966-5557
Fax: (202) 966-8553
http://www.geneticalliance.org


National Organization for Rare Disorders

55 Kenosia Avenue
PO Box 1968
Danbury, CT 06813-1968
Phone: (203) 744-0100 or (800) 999-6673 (voicemail only)
TDD Number: (203) 797-9590
Fax: (203) 798-2291
http://www.rarediseases.org/


National Tay-Sachs and Allied Diseases Association

2001 Beacon Street Suite 204
Brighton, MA 02135
Phone: (800) 90-NTSAD (906-8723) or (617) 277-4463
Fax: (617) 277-0134
http://www.ntsad.org


The Myelin Project

1400 Wallace Blvd. Suite 258
Amarillo, TX  79106
Phone: (806) 356-4693
Toll Free: (800) 869-3546
Fax: (806) 356-4694
http://www.myelin.org/
 

United Leukodystrophy Foundation

2304 Highland Drive
Sycamore, Illinois USA 60178
Phone: (800) 728-5483
FAX: (815) 895-2432
http://www.ulf.org/
 

Lissencephaly

http://www.ninds.nih.gov/disorders/lissencephaly/lissencephaly.htm


National Organization for Rare Disorders

55 Kenosia Avenue
PO Box 1968
Danbury, CT 06813-1968
Phone: (203) 744-0100 or (800) 999-6673 (voicemail only)
TDD Number: (203) 797-9590
Fax: (203) 798-2291
http://www.rarediseases.org/

 

Mega Cisterna Magna

http://www.ninds.nih.gov/disorders/dandywalker/dandywalker.htm

Dandy-Walker Alliance

4422 Clearbrook Lane
Kensington, Maryland 20895
Phone 1: +1 301 919 2653
Phone 2: +1 321 446 0349
http://www.dandy-walker.org/
 

Guardians of Hydrocephalus Research Foundation

2618 Avenue Z
Brooklyn, NY 11235
Phone: (718) 743-4473
Fax: (718) 743-1171
http://ghrf.homestead.com/ghrf.html
 

Hydrocephalus Association

870 Market Street, Suite 705
San Francisco, CA 94102
Phone: (415) 732-7040 or toll-free (888) 598-3789
Fax: (415) 732-7044
http://www.hydroassoc.org/default.htm
 

The March of Dimes

1275 Mamaroneck Avenue
White Plains, NY 10605
Phone: 914-428-7100 888-MODIMES (663-4637)
Fax: 914-428-8203
http://www.marchofdimes.com

National Hydrocephalus Foundation

12413 Centralia Road
Lakewood, CA 90715-1623
Phone: (800) 857-3434 or (562) 402-3523
Fax: (562) 924-6666
http://www.nhonline.org


National Organization for Rare Disorders

55 Kenosia Avenue
PO Box 1968
Danbury, CT 06813-1968
Phone: (203) 744-0100 or (800) 999-6673 (voicemail only)
TDD Number: (203) 797-9590
Fax: (203) 798-2291
http://www.rarediseases.org/

Megalencephaly

http://www.ninds.nih.gov/disorders/megalencephaly/megalencephaly.htm


Genetic Alliance, Inc.

4301 Connecticut Ave. NW Suite 404
Washington, D.C.  20008-2369
Phone: (202) 966-5557
Fax: (202) 966-8553
http://www.geneticalliance.org


Hemimegalencephaly Family Support Network

http://www.hemimegalencephaly.com/


The March of Dimes

1275 Mamaroneck Avenue
White Plains, NY 10605
Phone: 914-428-7100 888-MODIMES (663-4637)
Fax: 914-428-8203
http://www.marchofdimes.com

National Organization for Rare Disorders

55 Kenosia Avenue
PO Box 1968
Danbury, CT 06813-1968
Phone: (203) 744-0100 or (800) 999-6673 (voicemail only)
TDD Number: (203) 797-9590
Fax: (203) 798-2291
http://www.rarediseases.org/


Microcephaly

 http://www.ninds.nih.gov/disorders/microcephaly/microcephaly.htm


National Organization for Rare Disorders

55 Kenosia Avenue
PO Box 1968
Danbury, CT 06813-1968
Phone: (203) 744-0100 or (800) 999-6673 (voicemail only)
TDD Number: (203) 797-9590
Fax: (203) 798-2291
http://www.rarediseases.org/
 

Multiple Sclerosis

 http://www.msfacts.org/info_faq.php

National Multiple Sclerosis Society

733 Third Avenue
New York, NY 10017
Phone: (800) FIGHT-MS (800-344-4867)
http://www.nmss.org/
 

Nonverbal Learning Disorders

http://www.nldontheweb.org/little_1.htm

Children and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD)

8181 Professional Place, Suite 150
Landover, MD 20785
Phone: (301) 306-7070
Fax: (301) 306-7090
http://www.chadd.org/AM/Template.cfm?Section=Home

International Dyslexia Association

27 8600 LaSalle Road
Chester Building, Ste. 382
Baltimore, MD 21286-2044
Phone: 410-296-0232 800-ABCD123
Fax: 410-321-5069
http://www.interdys.org

LD (learning disabilities) Online

http://www.ldonline.org

Learning Disabilities Association of America

4156 Library Road
Suite 1
Pittsburgh, PA 15234-1349
Phone: 412-341-1515
Fax: 412-344-0224
http://www.ldaamerica.org

National Center for Learning Disabilities

381 Park Avenue South
Suite 1401
New York, NY 10016
Phone: (888) 575-7373 or (212) 545-7510
Fax: (212) 545-9665
http://www.ld.org

NLD (nonverbal learning disorders or disabilities) on the Web!

http://www.nldontheweb.org

Nonverbal Learning Disorders Association

507 Hopmeadow Street
Simsbury, CT 06070
Phone: (860) 658-5522
Fax: (860) 658-6688
http://www.nsastutter.org/index.php
 

Obsessive Compulsive Disorder

 http://www.nimh.nih.gov/publicat/ocdfacts.cfm

Anxiety Disorders Association of America

8730 Georgia Ave., Suite 600
Silver Spring, MD 20910
Phone: (240) 485-1001
Fax: (240) 485-1035
http://www.adaa.org/
 

NARSAD: The Mental Health Research Association

60 Cutter Mill Road, Suite 404
Great Neck, NY 11021
Phone: (516) 829-0091 or (800) 829-8289
Fax: (516)487-6930
http://www.narsad.org/
 

NARSAD Artworks

P.O. Box 941
La Habra, CA 90633-0941
Phone: (714) 529-5571 or (800) 607-2599
Fax: (714) 990-0791
https://narsadartworks.org/Default.aspx
 

National Alliance on Mental Illness

Colonial Place Three
2107 Wilson Blvd., Suite 300
Arlington, VA 22201-3042
Phone: (703) 524-7600
Fax: (703) 524-9094
TDD: (703) 516-7227
http://www.nami.org/


Obsessive Compulsive Foundation

676 State Street
New Haven, CT 06511
Phone: (203) 401-2070
Fax: (203) 401-2076
http://www.ocfoundation.org/
 

The Tourette Syndrome Association, Inc.

42-40 Bell Blvd.
Bayside, NY 11361
Phone: (718) 224-2999
Fax: (718) 279-9596
http://www.tsa-usa.org/
 

Ohtahara Syndrome

 http://www.ninds.nih.gov/disorders/ohtahara/ohtahara.htm

National Organization for Rare Disorders

55 Kenosia Avenue
PO Box 1968
Danbury, CT 06813-1968
Phone: (203) 744-0100 or (800) 999-6673 (voicemail only)
TDD Number: (203) 797-9590
Fax: (203) 798-2291
http://www.rarediseases.org/
 

Ohtahara Syndrome Self-Support Group (Ohtahara Syndrome online support and advocacy)

http://www.ohtaharasyndrome.org 
 

Panic Disorder

http://www.nimh.nih.gov/publicat/panicfacts.cfm

Anxiety Disorders Association of America

8730 Georgia Ave., Suite 600
Silver Spring, MD 20910
Phone: (240) 485-1001
Fax: (240) 485-1035
http://www.adaa.org/
 

NARSAD: The Mental Health Research Association

60 Cutter Mill Road, Suite 404
Great Neck, NY 11021
Phone: (516) 829-0091 or (800) 829-8289
Fax: (516)487-6930
http://www.narsad.org/
 

NARSAD Artworks

P.O. Box 941
La Habra, CA 90633-0941
Phone: (714) 529-5571 or (800) 607-2599
Fax: (714) 990-0791
https://narsadartworks.org/Default.aspx
 

National Alliance on Mental Illness

Colonial Place Three
2107 Wilson Blvd., Suite 300
Arlington, VA 22201-3042
Phone: (703) 524-7600
Fax: (703) 524-9094
TDD: (703) 516-7227
http://www.nami.org/
 

Parkinson's Disease

 http://www.michaeljfox.org/parkinsons/index.php

The Michael J. Fox Foundation for Parkinson’s Research

Grand Central Station
P.O. Box 4777
New York, NY 10163
Phone: (800) 708-7644
http://www.michaeljfox.org/
 

Parkinson’s Disease Foundation

1359 Broadway, Suite 1509
New York, NY 10018
Phone: (800) 457-6676 or (212) 923-4700
Fax: (212) 923-4778
http://www.pdf.org/
 

Phobias

http://healthyminds.org/multimedia/phobias.pdf

Anxiety Disorders Association of America

8730 Georgia Ave., Suite 600
Silver Spring, MD 20910
Phone: (240) 485-1001
Fax: (240) 485-1035
http://www.adaa.org/
 

NARSAD: The Mental Health Research Association

60 Cutter Mill Road, Suite 404
Great Neck, NY 11021
Phone: (516) 829-0091 or (800) 829-8289
Fax: (516)487-6930
http://www.narsad.org/
 

NARSAD Artworks

P.O. Box 941
La Habra, CA 90633-0941
Phone: (714) 529-5571 or (800) 607-2599
Fax: (714) 990-0791
https://narsadartworks.org/Default.aspx
 

National Alliance on Mental Illness

Colonial Place Three
2107 Wilson Blvd., Suite 300
Arlington, VA 22201-3042
Phone: (703) 524-7600
Fax: (703) 524-9094
TDD: (703) 516-7227
http://www.nami.org/
 

Post-partum Depression

 http://www.nmha.org/infoctr/factsheets/postpartum.cfm

Postpartum Support International

Jane Honikman, Founding Director
Trish Bielsky, Office Manager
927 N. Kellogg Avenue
Santa Barbara, CA 93111
Phone: (805) 967-7636
Fax: (805) 967-0608
http://www.postpartum.net/
 

Post-traumatic Stress Disorder

http://www.ncptsd.va.gov/facts/general/fs_what_is_ptsd.html

PTSD (Post Traumatic Stress Disorder) Alliance

http://www.ptsdalliance.org/home2.html
 

Progressive Supranuclear Palsy

http://www.ninds.nih.gov/disorders/psp/detail_psp.htm

BRAIN (Brain Resource and Information Network of the National Institute of Neurological Disorders and Stroke)

P.O. Box 5801
Bethesda, MD 20824
Phone: (800) 352-9424
http://www.ninds.nih.gov


CUREPSP (Society for Progressive Supranuclear Palsy)

Executive Plaza III
11350 McCormick Road, Ste. 906
Hunt Valley, MD 21031
Phone: (410) 785-7004 or (800) 457-4777
Fax: (410) 785-7009
http://www.curepsp.org


WE MOVE (Worldwide Education & Awareness for Movement Disorders)

204 West 84th Street
New York, NY 10024
Phone: (212) 875-8312 or (212) 875-8312
Fax: (212) 875-8389
http://www.wemove.org
 

Rasmussen's Encephalitis

http://www.ninds.nih.gov/disorders/rasmussen/rasmussen.htm

American Autoimmune Related Disease Association

22100 Gratiot Avenue
Eastpointe, MI  48201
Phone: (586) 776-3900 (800) 598-4668
Fax: (586) 776-3903
http://www.aarda.org


Epilepsy Foundation

8301 Professional Place
Landover, MD 20785-7223
Phone: (800) 332-1000
http://www.epilepsyfoundation.org/aboutus/


Encephalitis Society

7B Saville Steet
Malton, North Yorkshire, YO17 7LL
United Kingdom
Phone: (44) 1652 625 583
http://www.encephalitis.info


MUMS (Mothers United for Moral Support, Inc.)

150 Custer Court
Green Bay, WI 54301
Phone: (920) 336-5333
http://www.netnet.net/mums/


National Organization for Rare Disorders

55 Kenosia Avenue
PO Box 1968
Danbury, CT 06813-1968
Phone: (203) 744-0100 or (800) 999-6673 (voicemail only)
TDD Number: (203) 797-9590
Fax: (203) 798-2291
http://www.rarediseases.org/


National Institute of Neurological Disorders and Stroke

NIH Neurological Institute
P.O. Box 5801
Bethesda, MD 20824
Phone: (800) 352-9424 or (301) 496-5751
TTY : (301) 468-5981
http://www.ninds.nih.gov/


Rasmussen's Syndrome and Hemispherectomy Support Network

8235 Lethbridge Road
Millersville, MD 21108
Phone: (410) 987-5221


The Arc of the United States

1010 Wayne Avenue
Suite 650
Silver Spring, MD 20910
Phone: (301) 565-3842
Fax: (301) 565-3843 or -5342
http://www.thearc.org




Rett Syndrome

http://www.rettsyndrome.org/content.asp?pl=140&sl=162&contentid=162

Autism Society of America

7910 Woodmont Avenue, Suite 300
Bethesda, MD 20814-3067
Phone: (301) 657-0881 or (800) 3AUTISM
Fax: (301) 657-0869
http://www.autism-society.org
 

Cure Autism Now Foundation

5455 Wilshire Boulevard, Suite 2250
Los Angeles, CA 90036-4272
Phone: (323) 549-0500
Fax: (323) 549-0547
http://www.cureautismnow.org/
 

International Rett Syndrome Association

9121 Piscataway Road, #2B
Clinton, MD 20735
Phone: (800) 818-RETT
Fax: (301) 856-3336
http://www.rettsyndrome.org/
 

Schizoaffective Disorder

http://www.npi.ucla.edu/ssg/schizoaffective.htm

Schizophrenia.com (Schizophrenia online support and advocacy)

http://www.schizophrenia.com/
 

Schizophrenia Research Forum (Schizophrenia online research forum)

http://www.schizophreniaforum.org/abo/miss/default.asp/
 

NARSAD: The Mental Health Research Association

60 Cutter Mill Road, Suite 404
Great Neck, NY 11021
Phone: (516) 829-0091 or (800) 829-8289
Fax: (516)487-6930
http://www.narsad.org/
 

NARSAD Artworks

P.O. Box 941
La Habra, CA 90633-0941
Phone: (714) 529-5571 or (800) 607-2599
Fax: (714) 990-0791
https://narsadartworks.org/Default.aspx
 

National Alliance on Mental Illness

Colonial Place Three
2107 Wilson Blvd., Suite 300
Arlington, VA 22201-3042
Phone: (703) 524-7600
Fax: (703) 524-9094
TDD: (703) 516-7227
http://www.nami.org/
 

Schizophrenia

http://www.nimh.nih.gov/publicat/schizoph.cfm

Schizophrenia.com (Schizophrenia online support and advocacy)

http://www.schizophrenia.com/
 

Schizophrenia Research Forum (Schizophrenia online research forum)

http://www.schizophreniaforum.org/abo/miss/default.asp/
 

NARSAD: The Mental Health Research Association

60 Cutter Mill Road, Suite 404
Great Neck, NY 11021
Phone: (516) 829-0091 or (800) 829-8289
Fax: (516)487-6930
http://www.narsad.org/
 

NARSAD Artworks

P.O. Box 941
La Habra, CA 90633-0941
Phone: (714) 529-5571 or (800) 607-2599
Fax: (714) 990-0791
https://narsadartworks.org/Default.aspx
 

National Alliance on Mental Illness

Colonial Place Three
2107 Wilson Blvd., Suite 300
Arlington, VA 22201-3042
Phone: (703) 524-7600
Fax: (703) 524-9094
TDD: (703) 516-7227
http://www.nami.org/
 

Sensory Processing Disorder

http://www.thespiralfoundation.org/pdfs/Fact Sheet for Educators.pdf

Sensory Processing Disorder Foundation

5655 S. Yosemite St., Ste 305
Greenwood Village, CO 80111
Phone: 303.794.1182
Fax: 303.322.5550
http://www.spdfoundation.net/


The Spiral Foundation

124 Watertown Street
Watertown, MA 02472
Phone (617) 923-4410
http://www.thespiralfoundation.org/index.html

 

National Organization for Rare Disorders

55 Kenosia Avenue
PO Box 1968
Danbury, CT 06813-1968
Phone: (203) 744-0100 or (800) 999-6673 (voicemail only)
TDD Number: (203) 797-9590
Fax: (203) 798-2291
http://www.rarediseases.org/

Septo Optic Dysplasia

http://www.ninds.nih.gov/disorders/septo_optic_dysplasia/septo_optic_dysplasia.htm


Focus Families

228 E. Palomino Ct.
Gilbert, AZ 85296
Phone: (866) 362-8750
Fax: (866) 362-8750
http://www.focusfamilies.org
 

Magic Foundation

6645 West North Avenue
Oak Park, IL 60302
Phone: (708) 383-0808 or (800) 362-4423
Fax: (708) 383-0899
http://www.magicfoundation.org
 

National Organization for Rare Disorders

55 Kenosia Avenue
PO Box 1968
Danbury, CT 06813-1968
Phone: (203) 744-0100 or (800) 999-6673 (voicemail only)
TDD Number: (203) 797-9590
Fax: (203) 798-2291
http://www.rarediseases.org/
 

Sleep Disorders

http://www.sleepfoundation.org/hottopics/index.php?secid=49

National Sleep Foundation

1522 K Street, NW, Suite 500
Washington, DC 20005
Phone: (202) 347-3471
Fax: (202) 347-3472
http://www.sleepfoundation.org/joinus/index.php
 

Smith-Magenis Syndrome

http://www.smithmagenis.org/WhatisSMS/overview_ssynd.htm

National Organization for Rare Disorders

55 Kenosia Avenue
PO Box 1968
Danbury, CT 06813-1968
Phone: (203) 744-0100 or (800) 999-6673 (voicemail only)
TDD Number: (203) 797-9590
Fax: (203) 798-2291
http://www.rarediseases.org/
 

PRiSMS (Parents and Researchers Interested in Smith-Magenis Syndrome)

P.O. Box 741914
Dallas, TX 75374-1914
Phone: (972) 231-0035
Fax: (413) 826-6539
http://www.smithmagenis.org/start.htm
 

Stroke

http://www.cdc.gov/Stroke/stroke_facts.htm

National Institute of Neurological Disorders and Stroke

NIH Neurological Institute
P.O. Box 5801
Bethesda, MD 20824
Phone: (800) 352-9424 or (301) 496-5751
TTY : (301) 468-5981
http://www.ninds.nih.gov/
 

Stuttering

http://www.nidcd.nih.gov/health/voice/stutter.asp

National Stuttering Association

119 W. 40th Street, 14th Floor
New York, NY 10018
Phone: (800) We Stutter (800-937-8888)
http://www.nsastutter.org/index.php
 

Tourette Syndrome

http://www.cdc.gov/ncbddd/tourette/default.htm

The Tourette Syndrome Association, Inc.

42-40 Bell Blvd.
Bayside, NY 11361
Phone: (718) 224-2999
Fax: (718) 279-9596
http://www.tsa-usa.org/
 

Transmissible Spongiform Encephalopathies

 http://www.ninds.nih.gov/disorders/tse/tse.htm
 

Williams Syndrome

http://www.williams-syndrome.org/forparents/whatiswilliams.html

Williams Syndrome Association

P.O. Box 297
Clawson, MI 48017-0297
Phone: (248) 244-2229 or (800) 806-1871
Fax: (248) 244-2230
http://www.williams-syndrome.org/about/index.html