Addiction/Substance Abuse/Dependence
http://www.nmha.org/substance/factsheet.cfm
National Council
on Alcoholism and Drug Dependence
22 Cortlandt Street, Suite 801
New York, NY 10007-3128
Phone: (212) 269-7797
Fax: (212) 269-7510
Help Line: (800) NCA-CALL (24-hour Affiliate referral)
http://www.ncadd.org/index.html
NARSAD: The Mental
Health Research Organization
60 Cutter Mill Road, Suite 404
Great
Neck,
NY
11021
Phone: (516)
829-0091
or
(800)
829-8289
Fax: (516)487-6930
http://www.narsad.org/
NARSAD
Artworks
P.O. Box 941
La
Habra,
CA
90633-0941
Phone: (714)
529-5571
or
(800)
607-2599
Fax: (714)
990-0791
https://narsadartworks.org/Default.aspx
National
Alliance on Mental Illness
Colonial Place Three
2107 Wilson Blvd., Suite 300
Arlington, VA 22201-3042
Phone: (703)
524-7600
Fax: (703)
524-9094
TDD: (703)
516-7227
http://www.nami.org/
National Council on Alcoholism and Drug Dependence
22 Cortlandt Street, Suite 801
New York, NY 10007-3128
Phone: (212) 269-7797
Fax: (212) 269-7510
Help Line: (800) NCA-CALL (24-hour Affiliate referral)
http://www.ncadd.org/index.html
National
Organization on Fetal Alcohol Syndrome
900 17th Street, NW, Suite 910
Washington, DC 20006
Phone: (202)
785-4585,
+1 (800) 66NOFAS
Fax: (202)
466-6456
http://www.nofas.org/about/
Racing
for Recovery
6936 Clare Ct.
Sylvania, OH 43560
Phone: (419)
824-8462
http://www.racingforrecovery.com/
Substance Abuse and Mental Health Services Administration
1 Choke Cherry Road
Rockville, MD 20857
Phone: (240)
276-2000
Fax: (240)
276-2010
http://www.samhsa.gov/
Agenesis of the Corpus Callosum/Corpus Callosum Disorders
http://www.ninds.nih.gov/disorders/agenesis/agenesis.htm
ACC (Agenesis of
the Corpus Callosum) Network
5749 Merrill
Hall, Room 118
College of Education and Human Development
University of Maine
Orono, ME 04469-5749
Phone: (207) 581-3119
Fax: (207) 581-3120
http://www.umaine.edu/edhd/research/accnetwork.htm
Angels
Around the World (Agenesis of the Corpus Callosum online support and
advocacy)
http://members.tripod.com/~scenicbeauty/AngelsAroundTheWorld.html
The March of Dimes
1275 Mamaroneck Avenue
White Plains, NY 10605
Phone: 914-428-7100 888-MODIMES (663-4637)
Fax: 914-428-8203
http://www.marchofdimes.com
National
Organization of Disorders of the Corpus Callosum
PMB 363
18032-C Lemon Drive
Yorba Linda, CA 92886
Phone:
(714)
747-0063
Fax: (714)
693-0808
http://www.nodcc.org/
National
Organization for Rare Disorders
55 Kenosia Avenue
PO Box 1968
Danbury, CT 06813-1968
Phone: (203)
744-0100
or
(800)
999-6673
(voicemail only)
TDD Number: (203)
797-9590
Fax: (203)
798-2291
http://www.rarediseases.org/
Alzheimer’s Disease
http://www.nmha.org/infoctr/factsheets/101.cfm
Alzheimer’s Association
National Office
225 N. Michigan Ave.,
Fl. 17
Chicago, IL 60601-7633
Phone: (800)
272-3900
http://www.alz.org/
Amyotrophic Lateral Sclerosis (ALS/Lou
Gehrig's Disease)
http://www.alsa.org/als/facts.cfm
ALS Association
27001 Agoura Road, Suite 150
Calabasas Hills,
CA
91301-5104
Phone: (818)
880-9007
Fax: (818)
880-9006
http://www.alsa.org/
Anxiety Disorders
http://www.nmha.org/camh/anxiety/anxdis.cfm
Anxiety Disorders Association of America
8730 Georgia Ave., Suite 600
Silver Spring,
MD
20910
Phone: (240)
485-1001
Fax: (240)
485-1035
http://www.adaa.org/
NARSAD:
The Mental Health Research Association
60 Cutter Mill Road, Suite 404
Great
Neck,
NY
11021
Phone: (516)
829-0091
or
(800)
829-8289
Fax: (516)487-6930
http://www.narsad.org/
NARSAD
Artworks
P.O. Box 941
La
Habra,
CA
90633-0941
Phone: (714)
529-5571
or
(800)
607-2599
Fax: (714)
990-0791
https://narsadartworks.org/Default.aspx
National
Alliance on Mental Illness
Colonial Place Three
2107 Wilson Blvd., Suite 300
Arlington, VA 22201-3042
Phone: (703)
524-7600
Fax: (703)
524-9094
TDD: (703)
516-7227
http://www.nami.org/
National
Association of Anorexia Nervosa and Associated Disorders
P.O. Box 7
Highland Park,
IL
60035
Phone: (847)
831-3438
Fax: (847)
433-4632
http://www.anad.org/site/anadweb/
National
Eating Disorders Association
603 Stewart St., Suite 803
Seattle, WA 98101
Phone: (206)
382-3587
Help Line: (800)
931-2237
http://www.nationaleatingdisorders.org/p.asp?WebPage_ID=331
Obsessive Compulsive Foundation
676 State Street
New Haven,
CT
06511
Phone: (203)
401-2070
Fax: (203)
401-2076
http://www.ocfoundation.org/
PTSD
(Post Traumatic Stress Disorder)
Alliance
http://www.ptsdalliance.org/home2.html
Arnold-Chiari Malformation
http://www.ninds.nih.gov/disorders/chiari/chiari.htm
National Organization for Rare Disorders
55 Kenosia Avenue
PO Box 1968
Danbury, CT 06813-1968
Phone:
(203)
744-0100
or
(800)
999-6673
(voicemail only)
TDD Number: (203)
797-9590
Fax: (203)
798-2291
http://www.rarediseases.org/
Ataxia Telangiectasia
http://www.nlm.nih.gov/medlineplus/ency/article/001394.htm
Ataxia Telangiectasia Children's Project (A-T Children's Project)
668 South Military Trail
Deerfield Beach Florida 33442-3023
Phone: (954) 481-6611 or (800) 543-5728
Fax: (954) 725-1153
http://www.communityatcp.org/NETCOMMUNITY/Page.aspx?pid=567&srcid=-2
National Ataxia Foundation
2600 Fernbrook Lane Suite 119
Minneapolis, MN 55447-4752
Phone: (763)553-0020
Fax: (763) 553-0167
http://www.ataxia.org/about/national-ataxia-foundation.aspx
Attention Deficit Disorder
http://www.nmha.org/infoctr/factsheets/71.cfm
Children and Adults with Attention Deficit Hyperactivity Disorder
8181 Professional Place, Suite 150
Landover, MD 20785
Phone: (301)
306-7070
Fax: (301)
306-7090
http://www.chadd.org/AM/Template.cfm?Section=Home
Autism/Asperger Syndrome/Pervasive Developmental Disorders
http://www.nmha.org/infoctr/factsheets/73.cfm
Autism Society of
America
7910 Woodmont Avenue, Suite 300
Bethesda, MD 20814-3067
Phone:
(301)
657-0881
or (800) 3AUTISM
Fax: (301)
657-0869
http://www.autism-society.org
Cure
Autism Now Foundation
5455 Wilshire Boulevard, Suite 2250
Los Angeles,
CA
90036-4272
Phone: (323)
549-0500
Fax: (323)
549-0547
http://www.cureautismnow.org/
International Rett Syndrome Association
9121 Piscataway Road, #2B
Clinton, MD 20735
Phone: (800) 818-RETT
Fax:
(301)
856-3336
http://www.rettsyndrome.org/
Bipolar Disorder
http://www.nmha.org/infoctr/factsheets/25.cfm
Bipolar Focus (Bipolar disorder online support and advocacy)
http://www.pendulum.org/index.html
Child
and Adolescent Bipolar Foundation
1000 Skokie Boulevard, Suite 570
Wilmette, Illinois 60091
Phone: (847)
256-8525
Fax: (847)
920-9498
www.bpkids.org
Depression and Bipolar Support
Alliance
730 N. Franklin Street, Suite 501
Chicago, IL 60610-7224 USA
Phone: (800)
826-3632
Fax: (312)
642-7243
http://www.dbsalliance.org/advocacy/advocate.html
NARSAD:
The Mental Health Research Association
60 Cutter Mill Road, Suite 404
Great
Neck,
NY
11021
Phone: (516)
829-0091
or
(800)
829-8289
Fax: (516)487-6930
http://www.narsad.org/
NARSAD
Artworks
P.O. Box 941
La
Habra,
CA
90633-0941
Phone: (714)
529-5571
or
(800)
607-2599
Fax: (714)
990-0791
https://narsadartworks.org/Default.aspx
National
Alliance on Mental Illness
Colonial Place Three
2107 Wilson Blvd., Suite 300
Arlington, VA 22201-3042
Phone: (703)
524-7600
Fax: (703)
524-9094
TDD: (703)
516-7227
http://www.nami.org/
Borderline Personality Disorder
http://www.nimh.nih.gov/publicat/bpd.cfm?textSize=L
Borderline Personality Disorder Research Foundation
340 W. 12th Street
New York,
NY
10014
Phone: (212)
421-5244
Fax: (212)
421-5243
http://www.borderlineresearch.org/index.html
BPDCentral.com (Borderline personality disorder online support and
advocacy)
http://www.bpdcentral.com/index.shtml
NARSAD:
The Mental Health Research Association
60 Cutter Mill Road, Suite 404
Great
Neck,
NY
11021
Phone: (516)
829-0091
or
(800)
829-8289
Fax: (516)487-6930
http://www.narsad.org/
NARSAD
Artworks
P.O. Box 941
La
Habra,
CA
90633-0941
Phone: (714)
529-5571
or
(800)
607-2599
Fax: (714)
990-0791
https://narsadartworks.org/Default.aspx
National
Alliance on Mental Illness
Colonial Place Three
2107 Wilson Blvd., Suite 300
Arlington, VA 22201-3042
Phone: (703)
524-7600
Fax: (703)
524-9094
TDD: (703)
516-7227
http://www.nami.org/
Brain Injury
http://www.cdc.gov/ncipc/tbi/TBI.htm
Brain Injury Association of America
8201 Greensboro Drive, Suite 611
McLean, VA 22102
Phone: (703)
761-0750
or
(800)
444-6443
http://www.biausa.org/index.html
Brain
Injury Resource Foundation
1841 Montreal Road, Suite 220
Tucker, GA 30084
Phone: (678)
937-1555
or
(888)
334-2424
Fax: (678)937-1557
http://www.birf.info/index.shtml
Brain Tumor
http://www.tbts.org/itemDetail.asp?categoryID=383&itemID=16635
American
Cancer Society (National Headquarters)
1599 Clifton Road, NE
Atlanta, GA 30329
Phone: (800)
ACS-2345
http://www.cancer.org
Brain
Tumor Society
124 Watertown Street, Suite 3H
Watertown,
MA
02472
Phone: (800)
770-8287
Fax: (617)
924-9998
http://www.tbts.org/itemDetail.asp?categoryID=262&itemID=16243
Children’s Brain Tumor Foundation
274 Madison Avenue, Suite 1004
New York,
NY
10016
http://www.cbtf.org/about.html
National
Brain Tumor Foundation
22 Battery Street, Suite 612
San Francisco, CA 94111-5520
Phone: (800) 934-CURE
or
(415)
834-9970
http://www.braintumor.org/index.html
North
American Brain Tumor Coalition
Elizabeth Goss, Esq., NABTC Counsel, Ropes & Gray, LLP
One Metro Center
700 12th Street, NW, Suite 900
Washington, DC 20005
Phone:
(202)
508-4670
Fax: (202)
508-4650
http://www.nabraintumor.org/about.html
Cerebral Palsy
http://www.marchofdimes.com/professionals/681_1208.asp
United Cerebral Palsy
1660 L Street NW, Suite 700
Washington, DC 20036
Phone:
(800)
872-5827
or
(202)
776-0406
Fax: (202)
776-0414
http://www.ucp.org/
The March of Dimes
1275 Mamaroneck Avenue
White Plains, NY 10605
Phone: 914-428-7100 888-MODIMES (663-4637)
Fax: 914-428-8203
http://www.marchofdimes.com
Cephalic Disorders
http://www.ninds.nih.gov/disorders/cephalic_disorders/cephalic_disorders.htm#What_is
Hydranencephaly.com (Hydranencephaly online support and advocacy)
http://www.hydranencephaly.com/index.html
The
Lissencephaly Network Inc.
10408 Bitterroot Court
Fort Wayne,
IN
46804
Phone: (260)
432-4310
Fax: (260)
432-4310
http://www.lissencephaly.org/
The March of Dimes
1275 Mamaroneck Avenue
White Plains, NY 10605
Phone: 914-428-7100 888-MODIMES (663-4637)
Fax: 914-428-8203
http://www.marchofdimes.com
National
Organization for Rare Disorders
55 Kenosia Avenue
PO Box 1968
Danbury, CT 06813-1968
Phone: (203)
744-0100
or
(800)
999-6673
(voicemail only)
TDD Number: (203)
797-9590
Fax: (203)
798-2291
http://www.rarediseases.org/
Chronic Fatigue and Immune Dysfunction Syndrome
http://www.cfids.org/about-cfids/fact-sheet.asp
Chronic Fatigue and Immune Dysfunction Syndrome Association of America
P.O. Box 220398
Charlotte, NC 28222-0398
http://www.cfids.org
International Association of Chronic Fatigue Syndrome
27 N. Wacker Drive Suite 416
Chicago, IL 60606
Phone:
(847)
258-7248
Fax: (847)
579-0975
http://www.aacfs.org
National
Fibromyalgia Association
Lynne Matallana, Director
2200 Glassell Street, Suite A
Orange,
CA
92865
Phone: (714)
921-0150
Fax: (714)
921-6920
http://www.fmaware.org
National
Fibromyalgia Research Association
P.O. Box 500
Salem, OR 97308
http://www.nfra.net
Colpocephaly
http://www.ninds.nih.gov/disorders/colpocephaly/Colpocephaly.htm
National
Organization for Rare Disorders
55 Kenosia Avenue
PO Box 1968
Danbury, CT 06813-1968
Phone: (203)
744-0100
or
(800)
999-6673
(voicemail only)
TDD Number: (203)
797-9590
Fax: (203)
798-2291
http://www.rarediseases.org/
Creutzfeldt - Jakob Disease
http://www.cjdfoundation.org/fact.html
Creutzfeldt - Jakob Disease Foundation
P.O. Box 5312
Akron, OH 44334 or
286 N. Cleveland-Massillon Rd., Suite N
Akron, OH 44333
Phone:
(330)
665-5590
Help Line: (800)
659-1991
Fax: (330)
668-2474
http://www.cjdfoundation.org/
Dandy-Walker Syndrome
http://www.ninds.nih.gov/disorders/dandywalker/dandywalker.htm
Dandy-Walker Alliance
4422 Clearbrook Lane
Kensington, Maryland 20895
Phone 1: +1 301 919 2653
Phone 2: +1 321 446 0349
http://www.dandy-walker.org/
Guardians of Hydrocephalus Research Foundation
2618 Avenue Z
Brooklyn, NY
11235
Phone: (718) 743-4473
Fax: (718) 743-1171
http://ghrf.homestead.com/ghrf.html
Hydrocephalus Association
870 Market Street, Suite 705
San Francisco, CA 94102
Phone: (415) 732-7040 or toll-free (888) 598-3789
Fax: (415) 732-7044
http://www.hydroassoc.org/default.htm
The March of Dimes
1275 Mamaroneck Avenue
White Plains, NY 10605
Phone: 914-428-7100 888-MODIMES (663-4637)
Fax: 914-428-8203
http://www.marchofdimes.com
National Hydrocephalus Foundation
12413 Centralia Road
Lakewood, CA 90715-1623
Phone: (800) 857-3434 or (562) 402-3523
Fax: (562) 924-6666
http://www.nhonline.org
National Organization for Rare Disorders
55 Kenosia Avenue
PO Box 1968
Danbury, CT 06813-1968
Phone:
(203)
744-0100
or
(800)
999-6673
(voicemail only)
TDD Number: (203)
797-9590
Fax: (203)
798-2291
http://www.rarediseases.org/
Depression
http://www.dbsalliance.org/info/depression.html
Depression and Bipolar Support
Alliance
730 N. Franklin Street, Suite 501
Chicago, IL 60610-7224 USA
Phone: (800)
826-3632
Fax: (312)
642-7243
http://www.dbsalliance.org/advocacy/advocate.html
NARSAD:
The Mental Health Research Association
60 Cutter Mill Road, Suite 404
Great
Neck,
NY
11021
Phone: (516)
829-0091
or
(800)
829-8289
Fax: (516)487-6930
http://www.narsad.org/
NARSAD
Artworks
P.O. Box 941
La
Habra,
CA
90633-0941
Phone: (714)
529-5571
or
(800)
607-2599
Fax: (714)
990-0791
https://narsadartworks.org/Default.aspx
National
Alliance on Mental Illness
Colonial Place Three
2107 Wilson Blvd., Suite 300
Arlington, VA 22201-3042
Phone: (703)
524-7600
Fax: (703)
524-9094
TDD: (703)
516-7227
http://www.nami.org/
Dystonia
http://www.nlm.nih.gov/medlineplus/dystonia.html
Dystonia Medical Research Foundation
One East Wacker Drive, Suite 2430
Chicago, Illinois 60601-1905
Phone: (312) 755-0198 or Toll Free (800)-377-DYST (3978)
http://www.dystonia-foundation.org/
National Spasmodic Torticollis Association
9920 Talbert Avenue
Fountain Valley, CA 92708
Phone: (714) 378-9837 or Support (800) 487-8385
http://www.torticollis.org/
Eating Disorders
http://www.nimh.nih.gov/publicat/eatingdisorders.cfm
Anxiety Disorders Association of America
8730 Georgia Ave., Suite 600
Silver Spring,
MD
20910
Phone: (240)
485-1001
Fax: (240)
485-1035
http://www.adaa.org/
NARSAD:
The Mental Health Research Association
60 Cutter Mill Road, Suite 404
Great
Neck,
NY
11021
Phone: (516)
829-0091
or
(800)
829-8289
Fax: (516)487-6930
http://www.narsad.org/
NARSAD
Artworks
P.O. Box 941
La
Habra,
CA
90633-0941
Phone: (714)
529-5571
or
(800)
607-2599
Fax: (714)
990-0791
https://narsadartworks.org/Default.aspx
National
Alliance on Mental Illness
Colonial Place Three
2107 Wilson Blvd., Suite 300
Arlington, VA 22201-3042
Phone: (703)
524-7600
Fax: (703)
524-9094
TDD: (703)
516-7227
http://www.nami.org/
National
Association of Anorexia Nervosa and Associated Disorders
P.O. Box 7
Highland Park,
IL
60035
Phone: (847)
831-3438
Fax: (847)
433-4632
http://www.anad.org/site/anadweb/
National
Eating Disorders Association
603 Stewart St., Suite 803
Seattle, WA 98101
Phone: (206)
382-3587
Help Line: (800)
931-2237
http://www.nationaleatingdisorders.org/p.asp?WebPage_ID=331
Epilepsy
http://www.epilepsyfoundation.org/answerplace/
Epilepsy Foundation
8301 Professional Place
Landover, MD 20785-7223
Phone: (800)
332-1000
http://www.epilepsyfoundation.org/aboutus/
Fetal Alcohol Syndrome Spectrum Disorders
http://www.cdc.gov/ncbddd/fas/fasask.htm
National Council
on Alcoholism and Drug Dependence
22 Cortlandt Street, Suite 801
New York, NY 10007-3128
Phone: (212) 269-7797
Fax: (212) 269-7510
Help Line: (800) NCA-CALL (24-hour Affiliate referral)
http://www.ncadd.org/index.html
National
Organization on Fetal Alcohol Syndrome
900 17th Street, NW, Suite 910
Washington, DC 20006
Phone: (202)
785-4585,
+1 (800) 66NOFAS
Fax: (202)
466-6456
http://www.nofas.org/about/
Fibromyalgia
http://www.nfra.net/
National Fibromyalgia Association
Lynne Matallana, Director
2200 Glassell Street, Suite A
Orange,
CA
92865
Phone: (714)
921-0150
Fax: (714)
921-6920
http://www.fmaware.org
National
Fibromyalgia Research Association
P.O. Box 500
Salem, OR 97308
http://www.nfra.net
HIV-Induced Dementia
http://www.about-dementia.com/dementia/infectious-dementia.php
Holoprosencephaly
http://www.ninds.nih.gov/disorders/holoprosencephaly/holoprosencephaly.htm
Carter Centers for Research in Holoprosencephaly
c/o Texas Scottish Rite Hospital
P.O. Box 190567
2222 Welborn Street
Dallas, TX 75219-9982
Phone: (214) 559-8411
Fax: (214) 559-8383
http://www.stanford.edu/group/hpe
National
Organization for Rare Disorders
55 Kenosia Avenue
PO Box 1968
Danbury, CT 06813-1968
Phone: (203)
744-0100
or
(800)
999-6673
(voicemail only)
TDD Number: (203)
797-9590
Fax: (203)
798-2291
http://www.rarediseases.org/
The Arc
of the United States
1010 Wayne Avenue
Suite 650
Silver Spring, MD 20910
Phone: (301) 565-3842
Fax: (301) 565-3843 or -5342
http://www.thearc.org
Huntington's Disease
http://www.stanford.edu/group/hopes/basics/basichd/a1.html
Huntington’s Disease Advocacy Center
http://www.hdac.org/
Hydranencephaly
http://www.ninds.nih.gov/disorders/hydranencephaly/hydranencephaly.htm
Hydranencephaly.com (Hydranencephaly online support and advocacy)
http://www.hydranencephaly.com/index.html
National
Organization for Rare Disorders
55 Kenosia Avenue
PO Box 1968
Danbury, CT 06813-1968
Phone: (203)
744-0100
or
(800)
999-6673
(voicemail only)
TDD Number: (203)
797-9590
Fax: (203)
798-2291
http://www.rarediseases.org/
Hydrocephalus
http://www.ninds.nih.gov/disorders/hydrocephalus/detail_hydrocephalus.htm
Guardians of Hydrocephalus Research Foundation
2618 Avenue Z
Brooklyn, NY 11235
Phone: (718)
743-4473
Fax: (718)
743-1171
http://ghrf.homestead.com/ghrf.html.
Hydrocephalus Association
870 Market Street, Suite 705
San Francisco,
CA
94102
Phone: (415)
732-7040
or toll-free
(888)
598-3789
Fax: (415)
732-7044
http://www.hydroassoc.org/default.htm
Learning Disabilities
http://www.nifl.gov/nifl/facts/learning_disabilities.html
Children and Adults with Attention-Deficit/Hyperactivity Disorder
(CHADD)
8181 Professional Place,
Suite 150
Landover, MD 20785
Phone: (301) 306-7070
Fax: (301) 306-7090
http://www.chadd.org/AM/Template.cfm?Section=Home
International Dyslexia Association
27 8600 LaSalle Road
Chester Building, Ste. 382
Baltimore, MD 21286-2044
Phone: 410-296-0232 800-ABCD123
Fax: 410-321-5069
http://www.interdys.org
LD (learning disabilities) Online
http://www.ldonline.org
Learning Disabilities Association of America
4156 Library Road
Suite 1
Pittsburgh, PA 15234-1349
Phone: 412-341-1515
Fax: 412-344-0224
http://www.ldaamerica.org
National Center for Learning Disabilities
381 Park Avenue South
Suite 1401
New York, NY 10016
Phone: (888) 575-7373 or (212) 545-7510
Fax: (212) 545-9665
http://www.ld.org
Leukodystrophy
http://www.ninds.nih.gov/disorders/leukodystrophy/leukodystrophy.htm
The Myelin Project
2136 Gallows Rd., Suite E
Dunn Loring, VA 22027
Phone:
(703)
560-5400
Toll Free: (800)
869-3546
Fax: (703)
560-0706
United
Leukodystrophy Foundation
2304 Highland Drive
Sycamore, Illinois USA 60178
Phone: (800)
